Table 1 Quantitative data collected in the Care Navigation randomised controlled trial
Type of data | Variables | Data source | Time of data collection |
|---|---|---|---|
Demographic and risk factor variables | Age, sex, Indigenous status, marital status | Electronic report from NSW Health database | Baseline. |
Literacy, language, ethnicity, income, education, BMI, living arrangements smoking, alcohol, physical and mental disability, comorbidities | Phone questionnaire-manual data entry | 12 months. | |
Psychosocial variables | Quality of life: EQ-5D questionnaire [16] | Phone questionnaire-manual data entry | Baseline, 12 months, 24 months. |
Patient experience: Picker patient experience questionnaire [18] | Mailed paper questionnaire-manual data entry | 12 months. | |
Hospital utilisation variables | For each emergency presentation within the follow-up period: Triage category, arrival date and time, departure date and time, mode of separation, presenting problem and diagnosis, UDAG status | Electronic report from NSW Health database | 24 months. |
For each hospital admission within the follow-up period: Arrival date and time, departure date and time, diagnosis related group (DRG), service related group (SRG), investigations conducted | Electronic report from NSW Health database | 24 months. | |
Community health utilisation variables | For each community referral within the follow-up period: Referral service type, appointment date and time, treatment administered, attendance and transport | Electronic report from NSW Health database | 24 months. |
Medication utilisation variables | Clinical service utilisation (MBS) | Electronic report from Statistics Medicare Australia | 24 months. |
Pharmaceutical utilisation (PBS) | Phone questionnaire (manual data entry) | Baseline, 12 months, 24 months. | |
Adherence to medications [19] | |||
Mortality data | Date of death | Electronic report from the National Death Index (Australian Institute of Health and Welfare) | 24 months. |