Integrated complex care coordination for children with medical complexity: A mixed-methods evaluation of tertiary care-community collaboration

Table 2 Participant demographics and clinical characteristics among participants (n=81)

Variable
Male gender, n (%)	52 (64%)
Age in years, mean (SD)	5.8 (4.7)
Primary caregiver
Mother, n (%)	69 (85%)
Gross Household Income, n (%):
$0-29 999	19 (31%)
$30,000 – 59 999	19 (31%)
$60,000 – 79 999	5 (8%)
$80 000 or more	18 (30%)
Chronic diagnoses, mean (SD)	8 (3)
Specialists seen in previous 6 months, mean (SD)	4 (2)
Prescription meds, mean (SD)	4 (3)
Complex chronic conditions ^a	77 (95%)
Neurological impairment, n (%) ^b	78 (96%)
Technology assistance ^c	46 (57%)

^a Using Feudtner’s definition [17] (utilizing International Classification of Diseases, 9^th and 10^th revision codes) of: any medical condition that can be reasonably expected to last at least 12 months (unless death intervenes) and to involve either several different organ systems or 1 organ system severely enough to require specialty pediatric care and probably some period of hospitalization in a tertiary care center.
^b Neurological impairment was based on Srivastava’s definition [18] of diagnoses consistent with static or progressive neurological, genetic or other disease that typically results in either functional and/or intellectual impairment.
^c Technology assistance was defined as requiring assistance from technology, such as a tracheostomy tube, feeding tube, or a wheelchair, for activities of daily living.

ISSN: 1472-6963