Skip to main content

Table 2 Participant demographics and clinical characteristics among participants (n=81)

From: Integrated complex care coordination for children with medical complexity: A mixed-methods evaluation of tertiary care-community collaboration

Variable  
Male gender, n (%) 52 (64%)
Age in years, mean (SD) 5.8 (4.7)
Primary caregiver  
Mother, n (%) 69 (85%)
Gross Household Income, n (%):  
$0-29 999 19 (31%)
$30,000 – 59 999 19 (31%)
$60,000 – 79 999 5 (8%)
$80 000 or more 18 (30%)
Chronic diagnoses, mean (SD) 8 (3)
Specialists seen in previous 6 months, mean (SD) 4 (2)
Prescription meds, mean (SD) 4 (3)
Complex chronic conditions a 77 (95%)
Neurological impairment, n (%) b 78 (96%)
Technology assistance c 46 (57%)
  1. a Using Feudtner’s definition [17] (utilizing International Classification of Diseases, 9th and 10th revision codes) of: any medical condition that can be reasonably expected to last at least 12 months (unless death intervenes) and to involve either several different organ systems or 1 organ system severely enough to require specialty pediatric care and probably some period of hospitalization in a tertiary care center.
  2. b Neurological impairment was based on Srivastava’s definition [18] of diagnoses consistent with static or progressive neurological, genetic or other disease that typically results in either functional and/or intellectual impairment.
  3. c Technology assistance was defined as requiring assistance from technology, such as a tracheostomy tube, feeding tube, or a wheelchair, for activities of daily living.