Table 1 Definitions of parents' profiles

Knowledge of disease

The knowledge about the characteristics of the disease

Sense of disease severity

The knowledge about possible complications of the disease

Adherence

Correct use of prescribed medicine and adherence to treatment advice (e.g. diet/inhalation therapy)

Level of effort

The level of effort in relation to the severity of the disease

Dutch language skills

The ability to speak and understand Dutch (good is if communication is possible without any linguistic barriers, e.g. an interpreter-translator)

Functional health literacy

The ability to understand and correctly use information during the consultation (e.g. giving a rationale of the prescribed treatment)