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Table 4 Frequency of codes and subcodes in the three groups

From: “So at least now I know how to deal with things myself, what I can do if it gets really bad again”—experiences with a long-term cross-sectoral advocacy care and case management for severe multiple sclerosis: a qualitative study

Code

PwsMS

Caregiver

HCS

Total

Gatekeeper Function

59

75

26

160

 CCM as continuous contact partner

41

33

18

92

 Consultation/Information on essential individual subjects

18

42

8

68

Broker Function

44

63

43

150

 Establish contacts

22

24

18

64

 Assistance in authority and health and social insurance matters

10

22

7

39

 Optimized care and living environment

12

17

18

47

Advocacy Function

103

115

43

261

 Multidimensional, comprehensive, cross-insurance system support

43

70

15

128

 Regaining, maintaining and supporting autonomy

25

11

3

39

 Reviving personal wellbeing

17

8

2

27

 Temporal relief

18

26

23

67

Outlook on CCM in standard care

84

81

116

281

 Communications

9

7

2

18

 Communication setting

29

10

5

44

 Improvement suggestions

10

13

21

44

 Effects of CCM discontinuation

10

9

3

22

 Potential of CCM

11

27

20

58

 Limitations

7

8

13

28

 Inclusion criteria CCM/ further patient groups who could benefit

6

7

38

51

 Financing/health and social insurance costs

2

0

14

16

Total codes

290

334

228

852

Total interviews

13

12

10

35