Table 3 Interview and sociodemographic characteristics
Total n (%) | Caregiver n (%) | HCS n (%) | PwsMS n (%) | |
|---|---|---|---|---|
Sex | ||||
Female | 21 (60) | 5 (41.6) | 8 (80.0) | 8 (61.5) |
Male | 14 (40) | 7 (58.3) | 2 (20.0) | 5 (38.5) |
Age | ||||
Mean | 54.2 | 57.3 | 50.8 | 53.9 |
SD | 9.5 | 8.4 | 6.7 | 11.7 |
Interview duration [min] | ||||
Mean | 23.9 | 27.4 | 24.7 | 20.1 |
SD | 11.1 | 12.5 | 11.7 | 8.7 |
Interview location | ||||
Online | 28 (80.0) | 9 (75.0) | 9 (90.0) | 10 (76.9) |
Face-to-face | 7 (20.0) | 3 (25.0) | 1 (10.0) | 3 (23.1) |
Relationship between participants | ||||
Partner | 9 (75.0) | 7 (53.8) | ||
Parent | 3 (25.0) | |||
No caregiver included | 6 (46.2) | |||
Living situationa | ||||
Alone | 5 | |||
Partner | 12 | 7 | ||
Child | 5 | 2 | ||
Patient | 1 | |||
Children | ||||
Yes | 10 (83.3) | 7 (53.8) | ||
No | 2 (16.7) | 6 (46.2) | ||
Country of origin | ||||
Germany | 11 (84.6) | |||
Poland | 1 (7.7) | |||
Hungary | 1 (7.7) | |||
Subgroupb | ||||
Subgroup 1 | 4 (30.8) | |||
Subgroup 2a | 5 (38.5) | |||
Subgroup 2b | 4 (30.8) | |||
EDSS at the time of inclusion into the COCOS-MS study | ||||
Mean | 6.8 | |||
Median | 7.0 | |||
SD | 0.7 | |||
Min | 6.0 | |||
Max | 8.0 | |||
Disease duration in years | ||||
Mean | 13.5 | |||
Median | 14 | |||
SD | 8.1 | |||
Min | 3 | |||
Max | 26 | |||
Highest school qualification (german system) | ||||
Abitur (higher education entrance qualification (A-levels)) | 3 (25) | 4 (30.8) | ||
Fachabitur (subject-related entrance qualification) | 1 (8.3) | 5 (38.5) | ||
Mittlere Reife (intermediate secondary school-leaving certificate (O-levels)) | 3 (25) | 2 (15.4) | ||
Hauptschulabschluss (main school qualification) | 5 (41.7) | 2 (15.4) | ||
Marital status | ||||
Single | 1 (8.3) | 3 (23.1) | ||
Married/ partnership | 10 (83.3) | 7 (53.8) | ||
Divorced | 1 (8.3) | 2 (15.4) | ||
Widowed | 1 (7.7) | |||