Table 1 Baseline Characteristics of Caregivers and Children (N = 101)
Caregivers | Children | |
|---|---|---|
Race/Ethnicity (select all that apply) | ||
African American or Black African or Black Caribbean or Creole White Multiracial Hispanic/Latinx | 68% (n = 69) 22% (n = 22) 4% (n = 4) 8% (n = 8) 1% (n = 1) 0% (n = 0) | 78% (n = 79) 22% (n = 22) 2% (n = 2) 1% (n = 1) 1% (n = 1) 1% (n = 1) |
Relation to Child with SCD | ||
Birth mother Birth father Adoptive mother Adoptive father Grandmother/Grandfather Other family member Protective guardian Other | 81% (n = 82) 9% (n = 9) 3% (n = 3) 0% (n = 0) 2% (n = 2) 1% (n = 1) 3% (n = 3) 1% (n = 1) | - - - - - - - - |
Number of Children with SCD | ||
1 child 2 children 3 children 4 or more children | 82% (n = 83) 15% (n = 15) 1% (n = 1) 1% (n = 1) | - - - - |
Child’s Sickle Cell Genotype | ||
SS SC SBeta + Thalassemia SBeta 0 Thalassemia I don’t know | - - - - - | 59% (n = 60) 29% (n = 29) 5% (n = 5) 2% (n = 2) 6% (n = 6) |