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Table 1 Survey and Interview Guide Questions

From: Understanding the Cures Act Information Blocking Rule in cancer care: a mixed methods exploration of patient and clinician perspectives and recommendations for policy makers

 

Survey Question

Response Options

Patient Survey

What is your overall opinion of the 21st Century Cures Act Interoperability and Information Blocking Rule that requires health care providers (such as doctors and nurses) to provide patients with on-demand access to their clinical notes?

- Strongly support

- Somewhat support

- Neutral

- Somewhat oppose

- Strongly oppose

- Not sure

- Never heard of it

Clinician Survey

What is your overall opinion of the 21st Century Cures Act Interoperability and Information Blocking Rule that requires clinicians to provide patients with on-demand access to your clinical notes?

- Strongly support

- Somewhat support

- Neutral

- Somewhat oppose

- Strongly oppose

- Not sure

- Never heard of it

 

Interview Guide Question

Follow up probes

Patient Interview Guide

Are you familiar with the 21st Century Cures Act Interoperability and Information Blocking Rule? [if no, provide brief overview]

How do you feel about the policy?

What, if anything, would you want your legislator to know? If you could share anything about this new policy, what would it be?

Clinician Interview Guide

Are you familiar with the 21st Century Cures Act Interoperability and Information Blocking Rule? [if no, provide brief overview]

How do you feel about the policy?

What do you want policy makers to know? If you could say anything to them about this new regulation, what would it be? In what ways, if at all, has your process of informing patients of diagnosis or discussing test results, treatment options and regimens changed now that the policy is in place?