Table 3 Percentage of CML patients who perceived to receive no or little information per item of the EORTC QLQ-INFO25 and mean scores (SD) on information provision scales of the EORTC QLQ-INFO25, questionnaire vs intervention group
| Â | Questionnaire group | Intervention group | Â | ||||
Percentage of cml patients who perceived to receive no or little information about: | Pre (n = 33) % | Post (n = 29) % | Δ | Pre (n = 75) % | Post (n = 57) % | Δ | Corrected P-value |
The diagnosis of your disease | 30.3 | 31.0 | 0.7 | 26.4 | 17.9 | −8.5 | .248 |
The extent (spread) of your disease | 42.4 | 55.2 | 12.8 | 41.9 | 33.9 | −8 | .133 |
The possible causes of your disease | 68.8 | 65.5 | −3.3 | 64.9 | 55.4 | −9.5 | .505 |
Whether the disease is under control | 18.2 | 17.2 | −1 | 17.6 | 12.5 | −5.1 | .281 |
The purpose of any medical tests you have had or may undergo | 27.3 | 31.0 | 3.7 | 20.3 | 16.1 | −4.2 | .448 |
The procedures of the medical tests | 24.2 | 24.1 | −0.1 | 23.0 | 16.4 | −6.6 | .608 |
The results of the medical tests you have already received | 18.2 | 10.3 | −7.9 | 12.2 | 9.1 | −3.1 | .622 |
The medical treatment | 18.2 | 13.8 | −4.4 | 13.5 | 9.1 | − 4.4 | .391 |
The expected benefit of the treatment | 30.2 | 27.6 | −2.6 | 18.9 | 9.1 | −9.8 | .106 |
The possible side-effects of your treatment | 54.5 | 35.7 | −18.8 | 51.4 | 27.3 | −24.1 | .688 |
The expected effects of the treatment on disease symptoms | 48.5 | 34.5 | −14 | 41.9 | 27.3 | −14.6 | .877 |
The effects of the treatment on social and family life | 87.9 | 72.4 | −15.5 | 81.1 | 72.7 | −8.4 | .529 |
The effect of the treatment on sexual activity | 83.9 | 82.8 | −1.1 | 90.5 | 88.9 | −1.6 | .940 |
Additional help outside the hospital | 90.9 | 93.1 | 2.2 | 97.2 | 85.5 | −11.7 | .025 |
Rehabilitation services | 90.9 | 92.9 | 2 | 94.5 | 87.3 | −7.2 | .155 |
Aspects of managing your illness at home | 93.9 | 86.2 | −7.7 | 87.7 | 85.5 | −2.2 | .357 |
Possible professional psychological support | 93.8 | 96.6 | 2.8 | 84.9 | 78.6 | −6.3 | .163 |
Different locations of care | 84.4 | 93.1 | 8.7 | 89.0 | 85.5 | −3.5 | .155 |
Things that you can do to help yourself get well | 75.0 | 78.6 | 3.6 | 78.1 | 78.2 | 0.1 | .402 |
EORTC-QLQ-INFO25 scalesa | Questionnaire group | Intervention group | Â | ||||
|  | Pre (n = 33) Mean (SD) | Post (n = 29) Mean (SD) | Δ | Pre (n = 75) Mean (SD) | Post (n = 57) Mean (SD) | Δ | Corrected P-value |
Information about | |||||||
 Disease | 58.8 (24.1) | 57.2 (22.5) | −1.6 | 57.1 (21.1) | 63.2 (20.6) | 6.1 | .115 |
 Medical tests | 71.7 (24.2) | 67.8 (20.6) | −3.9 | 69.7 (22.5) | 70.0 (22.2) | 0.3 | .442 |
 Treatments | 48.1 (18.4) | 53.8 (21.7) | 5.7 | 50.2 (19.1) | 55.4 (18.1) | 5.2 | .854 |
 Other services | 12.4 (18.1) | 13.2 (19.7) | 0.8 | 16.4 (18.6) | 22.3 (25.6) | 5.9 | .252 |
 Different location of care facilities | 18.7 (25.3) | 10.3 (20.1) | −8.4 | 16.9 (24.3) | 20.0 (30.5) | 3.1 | .052 |
 How to help yourself | 29.2 (31.4) | 29.8 (30.5) | 0.6 | 30.6 (26.5) | 33.3 (30.1) | 2.7 | .513 |
Received written information | 68.8 (47.1) | 67.9 (47.6) | −0.9 | 70.3 (46.0) | 71.4 (45.6) | 1.1 | .884 |
Received cd/video | 6.06 (24.2) | 10.3 (31.0) | 4.24 | 5.48 (22.9) | 7.14 (26.0) | 1.66 | .538 |
Satisfaction with amount of information | 43.4 (25.7) | 41.4 (21.2) | −2 | 38.4 (23.4) | 36.4 (20.6) | −2 | .865 |
Wish to receive more info | 33.3 (47.9) | 31.0 (47.1) | −2.3 | 45.9 (50.2) | 22.8 (42.3) | −23.1 | .106 |
Wish to receive less info | 66.7 (47.9) | 69.0 (47.1) | 2.3 | 54.1 (50.2) | 77.8 (42.0) | 23.7 | .105 |
Helpfulness of information | 31.3 (26.3) | 34.5 (26.4) | 3.2 | 31.1 (21.8) | 32.1 (22.2) | 1 | .222 |
Global score | 46.3 (16.1) | 46.7 (17.0) | 0.4 | 47.1 (15.9) | 51.2 (16.5) | 4.1 | .161 |