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Table 1 Overview of themes in relation to value co-creation activities and a sample of quotes

From: Value co-creation with family caregivers to people with dementia through a tailor-made mHealth application: a qualitative study

Themes

Brief description of the themes

Sample of quotes

Cooperating

Includes complying with the basic requirements or accepting the information provided by the service provider.

“Yes, it was like I felt that after I answered the questions (the assessment tool), we are not there yet so I could not contribute anything…” FC4.

Collating information

Includes assorting and sorting information such as management of basic daily activities.

”…the memory is very bad but otherwise, she participates, and she cooks… solves crossword puzzles…. I just try to help with remembering things…”  FC11.

Combining complementary therapies

Includes using additional treatment options (e.g., diet, meditation).

“…the relaxation exercises were very good, when I needed to rest and unwind a little, and just think about myself, then it was great.”  FC3.

Co-learning

Includes activities such as actively seeking knowledge outside of the healthcare provider and sharing the acquired information with the healthcare provider.

…of course, you get good information, there is a similar application that I looked at, the laws, agreements, and law and such, with information about the disease…” FC10.

Changing ways of doing things

Includes activities such as partaking in recreational activities and the management of long-term adaptive changes.

“…she has had money with her before and she was particular to have her wallet… but it has fallen into oblivion now, but they (the senior day care) sometimes have sales there…Maybe they (the staff) pay up and then I pay them back …. I have not experienced any problems so far but of course …is a little trickier.” FC2.

Connecting

Includes establishing and maintaining relations with individuals from various sources in the service network.

“My Silvia nurses (specialized nurses in dementia care) that I socialise with or that I meet every day…. They are very good to help if you need to discuss. …. they have great contact with us, you can talk about everything possible.” FC2.

Co-production

Includes high level proactive activities such as self-service, assisting in new service development, and reconfiguring one’s medical team.

“He has had a lot of problems with this about the healthcare centre and I have reported it…. It has been a lot of such things.”  FC1.

“Interviewer: Do you have any suggestions to improve?

Respondent: Yes, simpler and what is it called, more user-friendly and maybe clearer about this with the chat and how to use it and so on.”  FC7.

Cerebral activities

Include self-generated activities like reframing, sense making, positive thinking, and emotional labour (e.g., when patients prefer to be alone or don’t share their problems with others).

I think that (the person with dementia), we rather keep to ourselves…” FC12.