Table 5 Factor analyses of items administered to children, patients and health personnel

Factor

Item

F1

F2

F3

1 Information/conversation at the clinic

Did you have a conversation together with your ill parent and health personnel?

0.81

0.06

0.19

Did health personnel treating your parent tell you about your parent’s illness?

0.81

0.19

0.04

Did you have a conversation with health personnel without your ill parent present?

0.81

-0.03

0.01

Did you visit the place where your parent receives treatment?

0.69

0.01

-0.07

% of total variance explained

25.0

Cronbach’s alpha

0.81

2 Information/conversation at home.

Has another adult with whom you live told you about your parent’s illness?

0.11

0.71

-0.12

Has your ill parent told you about his/her illness?

-0.10

0.65

0.12

Are you talking openly about your parent’s illness in the family?

0.27

0.65

0.13

% of total variance explained

15.1

Cronbach’s alpha

0.46

3

Do you know of someone to contact if the situation at home becomes difficult?

-0.07

-0.09

0.75

Is a plan made for what the family can do if the illness gets worse?

0.14

0.15

0.61

Does your family receive enough help, so you can live normally?

0.05

0.03

0.47

Do you know enough about your parent’s illness?

-0.07

0.43

0.43

% of total variance explained

10.7

Cronbach’s alpha

0.42

Patients

F1

F2

F3

F4

F5

1 Conversations at clinic

Did health personnel ask about your child’s situation?

0.82

0.14

-0.04

0.06

-0.00

Did health personnel ask about your parental functioning?

0.78

0.12

-0.07

0.10

0.14

Were you asked whether you have children, on admission?

0.52

-0.09

0.07

-0.08

0.09

Were you informed about health personnel’s obligations to contribute to information and support to your child?

0.51

0.38

0.02

0.30

0.14

% of total variance explained

22.0

Cronbach’s alpha

0.69

2 Child information at clinic

Was a questionnaire about your child’s situation used?

0.14

0.64

-0.22

0.30

-0.16

Did your child attend a conversation with you and HP?

0.16

0.63

0.26

-0.09

0.21

Did your child visit the unit where you got treatment?

-0.04

0.58

0.36

-0.04

0.26

Were you offered a conversation with HP and your child?

0.47

0.55

0.09

0.15

0.28

% of total variance explained

7.6

Cronbach’s alpha

0.66

3 Child information at home

Has your child received sufficient information about your illness?

0.05

0.11

0.77

0.05

0.05

Have you given the child information about your illness?

-0.01

0.30

0.72

-0.02

-0.06

Is it openness about your illness in the family?

-0.04

-0.15

0.68

0.08

0.08

% of total variance explained

7.1

Cronbach’s alpha

0.63

4

Is a plan made for what the family can do if your illness gets worse?

0.09

0.11

0.02

0.83

0.00

Is it made clear who the family can contact if your illness gets worse?

0.05

-0.01

0.10

0.80

0.17

% of total variance explained

5.5

Cronbach’s alpha

0.67

5

Did your partner/the other parent participate in a conversation with HP?

0.06

0.14

0.12

0.02

0.84

Was your partner/the other parent offered a conversation?

0.22

0.11

-0.02

0.17

0.75

% of total variance explained

5.4

Cronbach’s alpha

0.64

6

Are you worried about your child’s well-being and functioning? (inversed)

-0.11

0.02

-0.09

0.04

-0.03

Has the family received enough help, so that your child’s needs are met?

0.31

0.10

0.20

0.16

0.05

% of total variance explained

Cronbach’s alpha

F1

F2

F3

F4

F5

F6

F7

1

Has the child received sufficient information about the parent’s illness?

0.81

0.26

0.07

0.11

-0.09

0.19

-0.04

Is it openness about the patient’s illness in the family?

0.77

-0.10

-0.05

-0.06

-0.03

-0.16

0.03

Has the child received sufficient information and help?

0.73

0.05

0.01

0.01

0.20

0.13

0.36

Has the patient given the child information about his/her illness?

0.72

0.35

-0.19

0.10

-0.16

0.14

-0.08

% of total variance explained

18.1

Cronbach’s alpha

0.89

2 Conversation with/information to children

Did the child visit the unit during the patient’s treatment?

0.20

0.67

0.05

0.32

0.07

-0.06

0.07

Did the child participate in a conversation alone with health personnel?

0.08

0.66

0.00

-0.24

0.06

-0.13

-0.09

Did the child participate in a conversation with health personnel and the patient?

0.25

0.64

-0.11

0.33

0.18

-0.07

0.22

Was the patient offered a conversation with you and the child?

0.01

0.59

0.26

0.32

0.06

0.28

0.10

% of total variance explained

8.6

Cronbach’s alpha

0.73

3 Registration and documentation

Was a questionnaire about the child’s situation used?

-0.10

0.11

0.78

-0.08

0.13

0.04

0.23

Is the child registered in the patient’s electronic record?

0.06

0.01

0.74

-0.12

0.05

0.13

-0.17

Was a note about the patient’s child written in his/her electronic record?

-0.08

-0.03

0.63

0.24

0.12

-0.14

0.07

% of total variance explained

7.9

Cronbach’s alpha

0.65

4

Was the patient’s partner invited to a conversation with health personnel?

-0.07

0.10

0.07

0.84

-0.06

0.15

-0.13

Did the patient’s partner participate in a conversation with health personnel?

0.13

0.10

-0.10

0.83

-0.02

0.08

0.03

% of total variance explained

6.3

Cronbach’s alpha

0.77

5 Conversations with patient about parenting and child’s situation

Has the child's situation been discussed with the patient?

-0.2

0.14

0.15

-0.07

0.88

0.15

-0.02

Has the patient's parental function been discussed with the patient?

-0.05

0.05

0.09

0.00

0.87

0.11

-0.03

% of total variance explained

5.9

Cronbach’s alpha

0.81

6

Is it clarified who the family can contact if the patient’s illness gets worse?

0.08

-0.11

-0.19

0.21

0.16

0.75

0.06

Is a plan made for what the family can do if the patient’s illness gets worse?

0.26

-0.15

0.28

0.06

0.21

0.67

0.21

Did the patient receive information about health personnel’s obligations to contribute to information and support to the child?

-0.08

0.38

0.40

0.05

0.08

0.61

-0.14

% of total variance explained

4.5

Cronbach’s alpha

0.63

7

Has the family received enough help so that the child’s needs are met?

0.35

0.01

0.16

-0.08

-0.07

0.06

0.74

Are you worried about the child’s well-being and functioning? (inversed)

-0.15

0.11

-0.11

-0.02

-0.01

0.04

0.69

% of total variance explained

4.3

Cronbach’s alpha

0.47