Table 1 Summary of the characteristics of included publications
Author(s), year | First author country | Study design | Terminology used | Target patient population | Level of the concept | Setting | Participant demographics | Type of data | Methodological quality appraisal |
|---|---|---|---|---|---|---|---|---|---|
Aspland et al., 2020 [49] | United Kingdom | Literature review | Clinical pathway | NA | Organizational | NA | NA | Number studies (n = 175) | NA |
Bergin et al., 2020 [2] | Australia | Literature review | Optimal care pathway | Cancer care | Systemic | NA | NA | NR | NA |
Busari et al., 2020 [50] | The Netherlands | Qualitative | Care pathway | Decubitus ulcer | Organizational | St. Elisabeth Hospital, Curaçao | Medical specialist Nurse Paramedical professional Management & educational staff | Participants (n = 33) Interviews (n = 10) | Medium |
Carayon et al., 2020 [24] | United States of America | Perspective article | Patient journey | NA | Systemic | NA | NA | NA | NA |
Cherif et al., 2020 [42] | France | Qualitative | Patient journey | Breast cancer | Systemic | National forum for breast cancer patients | Breast cancer patients | 967 reviews were collected over a year | Medium |
Devi et al., 2020 [51] | India | Literature review | Patient journey | Non-communicable Diseases | Systemic | NA | NA | NR | NA |
Elkhuizen et al., 2020 [52] | The Netherlands | Survey | Patient journey | Diabetes type 2 | Systemic | diabetes type 2 in a region of The Netherlands | 910 patients | quality of life (EQ5D), service satisfaction, experiences | Medium |
Hutchinson et al., 2020 [3] | Australia | Mixed-method | Care pathway | Refractory epilepsy | Systemic | New South Wales, Australia | Medical specialist, patients | Interviews (n = 22), observations (n = 10), surveys (n = 20) | Medium |
Kempa-Liehr et al., 2020 [43] | New Zealand | Qualitative | Care pathway | Appendicectomy | Organizational | North Shore Hospital, New Zealand | NR | NR | Low |
Ocloo et al., 2020 [53] | United Kingdom | Qualitative | Patient-centred care | Stroke and hip fracture | Systemic | King’s Fund (11 hospitals) | Doctors, nurses, senior managers, service improvement specialists and patient representatives | Participatory action research, documentary analysis, participatory steering groups (n = 7), focus group (n = 8) and interviews (n = 47) | High |
Seguin et al., 2020 [35] | United Kingdom | Literature review | Care pathway | Cardiovascular diseases | Systemic | NA | NA | Number studies (n = 15) | NA |
Alkandari et al., 2019 [5] | United Kingdom | Qualitative | Patient journey | Peripheral Neuropathy | Systemic | Ibn Sina Neurology and Neurosurgery Hospital | Patients | Interviews (n = 25) | Medium |
Ayachi et al., 2019 [54] | Tunisia | Survey | Care process | NR | Organizational | UHC Habib Thameur and Charles Nicolle Hospital | Hospital staff, head of department, engineers and patients. | NR | Low |
De Belvis et al., 2019 [55] | Italy | Descriptive cross-sectional stud | Clinical pathway | Ischemic stroke | Systemic | Italian teaching hospital | 483 stroke patients | Electronic records (n = 483) | High |
Gualandi et al., 2019 [14] | Italy | Qualitative | Patient journey | Hip and knee replacement surgery | Organizational | 250-bed Italian teaching hospital | Patients and professionals | Interviews (n = 20), patient shadowing (n = 8) | High |
Louis et al., 2019 [56] | United States of America | Qualitative | Patient-centered care | Breast cancer | Systemic | Three health systems | Physician, inpatient and outpatient nursing, patient navigation, clinical trials, genetics, and care coordination. | Interviews (n = 30) | High |
Meyer, 2019 [57] | United States of America | Mixed-method | Patient journey | Multiple chronic conditions | Systemic | Large health system and its care partners | NR | NR | Low |
Schildmeijer et al., 2019 [15] | Sweden | Qualitative | Standardized care pathway | Prostate Cancer | Systemic | Midsized hospital in southeast Sweden | Professionals and patients | Interviews (n = 14) | Medium |
Fung-Kee-Fung et al., 2018 [4] | Canada | Mixed-method | Care process | Lung Cancer Care | Systemic | A regional Community of Practice, Ottawa | Professionals, patients and caregivers. | Interviews (n = 68), Quantitative data (NR) | Low |
Kelly et al., 2018 [1] | Australia | Qualitative | Patient journey | Aboriginal patient | Systemic | Adelaide region | Patients and their families, healthcare professionals, managers and support workers | Participatory action research from 2008 to 2015, interviews (n = 21) and focus groups (n = 17). | Medium |
Mohr et al., 2018 [58] | Czech Republic | Qualitative | Patient journey | Schizophrenia | Systemic | Board of the European Psychiatric Association | Representatives of patient and family organizations, health policy and economic experts, and drug companies | Interviews (n = NR) and focus group (n = NR) | Medium |
Ponsignon et al., 2018 [13] | France | Qualitative | Patient journey | Cancer | Systemic | UK Patient Opinion data | Patients | Stories (n = 200) | Medium |
Aziz et al., 2017 [59] | Malaysia | Qualitative | Integrated care pathway | Stroke | Systemic | Ministry of Health, Malaysia | Physicians, nurses and managers. | Focus group (n = 2) | Medium |
Combi et al., 2016 [60] | Italy | Qualitative | Care pathway | Chronic Obstructive Pulmonary Disease | Systemic | Region of Veneto | General practitioner | Focus group (n = NR), expert Interviews (n = NR), users’ input. | Low |
Gillespie et al., 2016 [61] | United Kingdom | Descriptive cross-sectional stud | Patient journey | Stroke | Systemic | Belfast City Hospital | Patient Administration System data | 5-year retrospective dataset (n = 1995) | High |
McCarthy et al., 2016 [30] | Ireland | Qualitative | Patient journey | Hypertension during Pregnancy | Systemic | NR | Multidisciplinary practitioners | Focus group (n = 4) | Medium |
Shaw et al., 2016 [62] | Australia | Survey studies | Clinical pathway | Anxiety and depression in adult cancer | Systemic | Australian oncology and psycho-oncology | Physicians | Dataset (n = 247) | Medium |
Valentijn et al., 2016 [12] | The Netherlands | Literature review | Value-based care | Chronic kidney disease | Systemic | NA | NA | Number studies (n = 26) | NA |
Walker et al., 2016 [63] | New Zealand | Descriptive cross-sectional stud | Patient journey | Breast Cancer | Systemic | North Shore hospital | Wide range of stakeholders | Dataset (n = 72) | Medium |
Beausejour et al., 2015 [36] | Canada | Descriptive cross-sectional stud | Care pathway | Suspected adolescent idiopathic scoliosis | Systemic | Paediatric orthopaedic clinics of south-western Quebec | Children and accompanying parents | Between February 2006 and August 2007, (n = 831) | High |
Grenness et al., 2014 [64] | Australia | Qualitative | Patient-centred care | Hearing aids | Systemic | Victoria | Adults who had owned hearing aids for at least 1 year | Interviews (n = 10) | Medium |
Van Citters et al., 2014 [65] | United States of America | Mixed-method | Clinical pathway | Total joint arthroplasties of the hip and knee | Systemic | County in southeast Sweden | Clinical, academic, and patient stakeholders | Interviews (n = 64), hospital databases (n = 4). | Medium |
Evans et al., 2013 [66] | Canada | Qualitative | Disease Pathway Management | Lung Cancer | Systemic | Cancer Care Ontario | Primary care, public health, occupational medicine, oncology, and supportive services, and patients and caregivers. | Focus group (n = 25) | Medium |
Huang et al., 2012 [67] | China | Qualitative | Patient-centered care | Anemia in pregnancy | Organizational | NR | Professionals | NR | Low |
Tehrani et al., 2012 [68] | United Kingdom | Qualitative | Clinical pathway | Gynecology | Organizational | NR | NR | NR | Low |
Vandborg et al., 2012 [69] | Denmark | Qualitative | Care process | Gynecological cancer | Systemic | Department of Gynecology and Obstetrics, Odense | Patient, general practitioner, and hospitals professionals | Number of cases (n = 6) | Medium |
Yang et al., 2012 [70] | China | Perspective article | Clinical pathway | NR | Organizational | NA | NA | NA | NA |
Manchaiah et al., 2011 [71] | United Kingdom | Qualitative | Patient journey | Hearing impairment | Systemic | Swansea Hard of Hearing Club | Patients (n = 32) | Focus group (n = NR) | Medium |
Yamazaki et al., 2011 [72] | Japan | Qualitative | Clinical pathways | NR | Organizational | Saiseikai Kumamoto Hospital and Fukui General Hospital | NR | Documents analysis, participant observation, and interviews | Low |
Vanhaecht et al., 2010 [25] | Belgium | Literature review | Care pathways | NA | Organizational | NA | NA | Number studies (n = NR) | NA |
Allen et al., 2009 [73] | United Kingdom | Literature review | Integrated care pathway | NA | Systemic | NA | NA | Number studies (n = 9) | NA |
Joosten et al., 2008 [74] | The Netherlands | Qualitative | Integrated care pathway | Mental Health Care | Organizational | Institute of Mental Health Care, Eindhoven | NR | NR | Low |
De Bleser et al., 2006 [38] | Belgium | Literature review | Clinical Pathway | NA | Organizational | NA | NA | Number studies (n = 37) | NA |
Bond et al., 2001 [75] | United Kingdom | Qualitative | Care pathway | Hip surgery | Organizational | Six orthopaedic departments in English hospitals | Managers, medical staff, clinical nurses and other professionals. | Interviews (n = NR) | Low |