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Table 1 The setting and focus of the in-situ observations, including the number of observations made in each setting. A total of five different guidelines were observed, GC1, GC4, GC5, GC6 and GC9. aSeveral meetings occurred over 2 days

From: Enhancing patient and public contribution in health outcome selection during clinical guideline development: an ethnographic study

Number of observations

Guideline Topic

Focus of observations

Breakdown of observations

In- depth guideline committee (GC) observations (n = 15)

 

All full day meetings

9.30am- 5 pm

  8

Cancer (GC4)

The inclusion of lay members in developing the guideline and the interactions and processes surrounding their inclusion

8 out of 8 possible meetings

12 full daysa

  7

Obstetrics (GC9)

7 out of 13 possible meetings

8 full daysa

Additional guideline committee (GC) meetings (n = 3)

 

All full day meetings

9.30am-5 pm

  1

Cancer (GC6)

The inclusion and interactions of lay members within the specific meeting

1

  1

Cardiovascular health (GC5)

1

  1

Gynecology (GC1)

1

Scoping workshops

(n = 3)

 

All half-day meeting

3 h meetings

  1

Dermatology

The inclusion of lay members in scoping of the guideline. The interactions and processes that occurred

1

  1

Mental health

1

  1

Rehabilitation

1

Training workshops

(n = 1)

 

All full day meetings

9.30am-5 pm

  1

Lay member training session

Training and advice NICE provided to lay members and their interactions on the day

1

Total meetings: n = 22

 

Total hours: 230 approximately