Table 1 Demographic, disease and treatment-related characteristics of participating patients and caregivers (n = 41)
|  | Patient (n = 30) n(%) | Caregiver (n = 11) n(%) |
|---|---|---|
Age in years (median (IQR)) | 64.5 (59 – 73.8) | 64.0 (60.5 - 72.5) |
Sex | ||
 Male | 20 (66.7) | 1 (9.1) |
 Female | 10 (33.3) | 10 (90.9) |
Cancer type | ||
 Pancreatic | 11 (36.7) | 7 (63.6) |
 Oesophagogastric | 19 (63.3) | 4 (36.4) |
  Oesophageal | 13(43.3) | 4 (36.4) |
  GOJ | 2 (6.7) | 0 (0) |
  Gastric | 4(13.3) | 0 (0) |
Time from diagnosis in months | ||
 4-9 M | 10 (33.3) | 7 (63.6) |
 10-15 M | 6 (20.0) | 3(27.3) |
 16-20 M | 4 (13.3) | 0 (0) |
 21-25 M | 6 (20.0) | 1 (9.1) |
 26-30 M | 1 (3.3) | 0 (0) |
 31-35 M | 2 (6.7) | 0 (0) |
 36 M+ | 1 (3.3) | 0 (0) |
Location a | ||
 Major City | 18 (60.0) | 9 (81.8) |
 Inner Regional | 7 (23.3) | 2 (18.2) |
 Outer Regional | 5 (16.7) | 0 (0) |
 Born in a country other than Australia | 10 (33.3) | 3 (27.3) |
 Interpreter required | 2 (6.7) | 0 (0) |
Education level | ||
 Below year 12 | 13 (43.3) | 2 (18.2) |
 Year 12 | 6 (20.0) | 2 (18.2) |
 Certificate or diploma | 7 (23.3) | 3 (27.3) |
 Undergraduate degree | 2 (6.7) | 3 (27.3) |
 Postgraduate degree | 2 (6.7) | 1 (9.1) |
Current employment status | ||
 Full time | 5 (16.7) | 1 (9.1) |
 Part time | 1 (3.3) | 3 (27.3) |
 Casual | 1 (3.3) | 1 (9.1) |
 No paid work | 23 (76.7) | 6 (54.5) |
Treatment(s) received b | ||
 Pancreatic (n = 11) | ||
  Surgery | 8 (72.7) | n/a |
  Chemotherapy | 11 (100.0) | n/a |
  Radiotherapy | 2 (18.2) | n/a |
 Oesophagogastric (n = 19) | ||
  Surgery | 12 (63.2) | n/a |
  Chemotherapy | 13 (68.4) | n/a |
  Radiotherapy | 8 (42.1) | n/a |