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Table 1 Case study descriptions

From: Implementing structured follow-up of neonatal and paediatric patients: an evaluation of three university hospital case studies using the functional resonance analysis method

Case study/ department

Follow Me programme launched

Outpatient follow-up time points or agesa

Number of clinical patients treated in 2019

Number of unique patients with an appointment in the follow-up programme in 2019

Neonatal ICUs

2020

6, 12 and 24 months and 5 and 8 years of age

Location AMC: ~ 400 unique neonates Location VUMC: ~ 360 unique neonates

Location AMC: ~ 500b Location VUMC: ~ 250b

Paediatric ICU

March 2018

3-to-6 and 12 months after ICU discharge; 6 years of age

564

92

Paediatric surgery department

October 2017

6, 12 and 24 months and 5, 6, 8, 12 and 16c years of age

46 infants born with congenital disorders in 2019

94

  1. afollow-up time points were chosen in accordance to research (e.g. PICU time point 6 years of age due to validity of lung tests), national standards (e.g. NICU time points), important steps in motor development (e.g. time point 12 months learning to walk) and patient or their families need (e.g. time point 6 years of age transition to school). bChildren in follow-up before the Follow Me programme was launched c Before 2019, age 17