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Table 2 Preliminary conceptual definitions presented to the experts-panel

From: Discontinuation of follow-up care for young people with complex chronic conditions: conceptual definitions and operational components

Preliminary type

Type 1

Type 2

Type 3

Type 4

Type 5

Preliminary term

Lost to follow-up

Retention in care

Gap in follow-up care

Unsuccessful transfer

Untraceability

Preliminary conceptual definition

No show or not being seen for a clinic visit within a defined time period and within a defined context

Attending a clinic visit within a defined time period and within a defined context

A defined time interval between clinic visits within a defined context

Not attending a clinic visit within a defined context after transfer

Failure to make contact due to lack of information

Agreement percentage

50%

91%

42%

75%

83%