Outcomes | Subjecta | userb | ITEMS/QUESTIONNAIRES |
---|---|---|---|
basic data on socio-demographics | patient | patient | Age, sex, type of school, grade |
custodian | Year of onset of disease, number of former hospital stays | ||
Disease | Staff at participating hospital | Psychiatric and somatic diagnoses (ICD-10), date of admission and discharge, setting, patient’s placement | |
health-related quality of life | patient | Health questionnaire KIDSCREEN-27 [25] | |
custodian | Health questionnaire KIDSCREEN-27, parent version [25] | ||
Symptom burden | patient & custodianc | Strengths and Difficulties Questionnaire (SDQ) [26] | |
Return to psychosocial relationships | patient & custodian | Own questions (friends, school, physical activity, hobbies, social integration, day structure) | |
treatment satisfaction | patient & custodianc | Treatment assessment questionnaire (FBB) [27] | |
costs | custodian | Own questionnaire adapted from the Client Sociodemographic Service and Receipt Inventory (CSSRI) [28] and the “Questionnaire on the use of medical and non-medical care services for mental illnesses” (FIMPsy) [29] | |
Burden on relatives | custodian | custodian | Questionnaire on the burden of relatives (FBA) [30] |
siblings | siblings | Health questionnaire KIDSCREEN-27 [25] for siblings Questionnaire on the burden of siblings (LARES) [31] |