Table 1 Patient demographics
All | % (correcteda) | Rare cancer (Group A) | % (correcteda) | Younger (Group B) | % (correcteda) | Non-rare cancer age ≥ 40 (Group C) | % (correcteda) | ||
|---|---|---|---|---|---|---|---|---|---|
N | 7080 | 11.3 (5.0) | 797 | 11.3 (5.0) | 709 | 10.0 (2.4) | 5574 | 78.7 (92.6) | |
Sex | Male | 3688 | 52.1 (53.3) | 477 | 59.8 (59.9) | 128 | 18.1 (16.6) | 3083 | 55.3 (53.9) |
Female | 3368 | 47.6 (46.2) | 318 | 39.9 (40.0) | 581 | 81.9 (83.4) | 2469 | 44.3 (45.6) | |
No response | 24 | 0.3 (0.5) | 2 | 0.3 (0.1) | 0 | 0.0 | 22 | 0.4 (0.6) | |
Ageb | Average (SD) | 66.4 (15.3) | 69.4 (12.3) | 65.8 (15.6) | 66.2 (22.6) | 36.9 (4.6) | 36.8 (9.2) | 70.6 (11.1) | 70.5 (10.1) |
Median (IQR) | 70 (58,77) | 71 (63,78) | 69 (56,77) | 68 (58,77) | 38 (35,40) | 38 (35,40) | 71 (64,78) | 71 (64,78) | |
Respondent | Patient | 5583 | 78.9 (78.4) | 576 | 72.3 (70.6) | 667 | 94.1 (92.8) | 4340 | 77.9 (78.5) |
Family | 1449 | 20.5 (20.9) | 215 | 27.0 (27.3) | 41 | 5.8 (7.2) | 1193 | 21.4 (20.9) | |
Other | 13 | 0.2 (0.2) | 4 | 0.5 (2.0) | 1 | 0.1 (0.0) | 8 | 0.1 (0.0) | |
No response | 35 | 0.5 (0.5) | 2 | 0.3 (0.1) | 0 | 0.0 | 33 | 0.6 (0.6) | |
Self-reported stage | 0 | 381 | 5.4 (5.9) | 33 | 4.1 (3.7) | 29 | 4.1 (4.7) | 319 | 5.7 (6.0) |
I | 1960 | 27.7 (28.3) | 135 | 16.9 (17.9) | 239 | 33.7 (34.1) | 1586 | 28.5 (28.7) | |
II | 1181 | 16.7 (17.1) | 91 | 11.4 (10.7) | 160 | 22.6 (24.0) | 930 | 16.7 (17.3) | |
III | 899 | 12.7 (13.5) | 90 | 11.3 (10.0) | 65 | 9.2 (9.3) | 744 | 13.3 (13.8) | |
IV | 1099 | 15.5 (15.2) | 162 | 20.3 (22.9) | 61 | 8.6 (7.7) | 876 | 15.7 (14.9) | |
Unknown | 1339 | 18.9 (17.1) | 267 | 33.5 (31.9) | 136 | 19.2 (18.2) | 936 | 16.8 (16.3) | |
No response | 221 | 3.1 (2.9) | 19 | 2.4 (3.0) | 19 | 2.7 (2.0) | 183 | 3.3 (3.0) | |
Self-reported cancer type | Breast | 959 | 13.5 (13.7) | 13 | 1.6 (1.6) | 216 | 30.5 (35.2) | 730 | 13.1 (13.8) |
Colon | 1023 | 14.4 (17.1) | 35 | 4.4 (5.6) | 55 | 7.8 (7.7) | 933 | 16.7 (18.0) | |
Stomach | 986 | 13.9 (16.3) | 25 | 3.1 (6.0) | 31 | 4.4 (7.6) | 930 | 16.7 (17.0) | |
Lung | 871 | 12.3 (13.4) | 37 | 4.6 (5.1) | 30 | 4.2 (3.7) | 804 | 14.4 (14.1) | |
Liver | 289 | 4.1 (4.7) | 13 | 1.6 (1.3) | 13 | 1.8 (1.1) | 263 | 4.7 (5.0) | |
Prostate | 737 | 10.4 (11.0) | 19 | 2.4 (3.3) | 13 | 1.8 (1.1) | 718 | 12.9 (11.7) | |
Cervix, Uterus | 414 | 5.8 (4.6) | 27 | 3.4 (3.1) | 122 | 17.2 (14.0) | 265 | 4.8 (4.5) | |
Ovary | 151 | 2.1 (2.0) | 6 | 0.8 (0.4) | 29 | 4.1 (2.5) | 116 | 2.1 (2.0) | |
Esophagus | 227 | 3.2 (3.7) | 8 | 1.0 (2.3) | 4 | 0.6 (0.4) | 215 | 3.9 (3.8) | |
Spleen | 177 | 2.5 (2.6) | 1 | 0.1 (0.0) | 3 | 0.4 (0.2) | 173 | 3.1 (2.8) | |
Oral | 382 | 5.4 (3.7) | 228 | 28.6 (30.6) | 7 | 1.0 (1.2) | 147 | 2.6 (2.4) | |
Thyroid | 205 | 2.9 (2.0) | 5 | 0.6 (0.4) | 81 | 11.4 (8.4) | 119 | 2.1 (1.9) | |
Lymphoma, leukemia | 515 | 7.3 (6.7) | 83 | 10.4 (8.0) | 97 | 13.7 (13.8) | 335 | 6.0 (6.5) | |
Bone, soft tissue sarcoma | 100 | 1.4 (1.0) | 58 | 7.3 (8.1) | 4 | 0.6 (0.8) | 38 | 0.7 (0.6) | |
Brain | 102 | 1.4 (1.0) | 54 | 6.8 (7.2) | 3 | 0.4 (0.3) | 45 | 0.8 (0.7) | |
Bladder | 178 | 2.5 (2.8) | 9 | 1.1 (1.7) | 2 | 0.3 (0.2) | 167 | 3.0 (2.9) | |
Testicle | 50 | 0.7 (0.3) | 47 | 5.9 (4.7) | 13 | 1.8 (1.1) | 3 | 0.1 (0.1) | |
Unknown primary | 40 | 0.6 (0.7) | 10 | 1.3 (1.8) | 5 | 0.7 (0.8) | 25 | 0.4 (0.6) | |
Other | 645 | 9.1 (7.8) | 218 | 27.4 (27.3) | 28 | 3.9 (6.0) | 399 | 7.2 (6.8) | |
No response | 147 | 2.1 (2.0) | 20 | 2.5 (2.4) | 13 | 1.8 (1.1) | 114 | 2.0 (2.0) |