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Table 5 The reasons for not being able to engage patients in ACP in hospital and community settings

From: Efficacy of Normalisation of Advance Care Planning (NACP) for people with chronic diseases in hospital and community settings: a quasi-experimental study

Reasons

Hospital settings

LHD1

(n = 414/524)

LHD2 (n = 296/554)

Total

(710/1078)

1. SDM know my wishes; No SDM in hospital

23 (3.2%)

56 (6.9%)

79 (5.2%)

2. Patient: were too unwell, not interested in, asleep, away at scan or dialysis, experienced cognitive decline or acute episode of mental health issue, had hearing impairment, felt too much going on emotionally and physically, need time to think about, and will do it at home

416 (59.5%)

482 (59.3%)

898 (59.4%)

3. Visited by Doctor

9 (1.3%)

34 (4.2%)

43 (2.8%)

4. Visited by Nurse

11 (1.6%)

30 (0.4%)

41 (2.7%)

5. Visited by Allied Health Professional

18 (2.6%)

20 (0.3%)

38 (2.5%)

6. Visited by family and friends

5 (0.7%)

39 (4.8%)

44 (2.9%)

7. Discharged or transferred or deceased

159 (22.7%)

41 (5%)

200 (13.2%)

8. Ran out of time

34 (4.9%)

2 (0.2%)

36 (2.4%)

9. Already have ACD (done with solicitor, not in hospital medical record)

15 (2.1%)

21 (2.6%)

36 (2.4%)

10. Not-For-Resuscitation order in place

9 (1.3%)

88 (0.9%)

97 (6.4%)

Total

699 (100%)

813 (100%)

1512 (100%)

Reasons

Community Settings

 

LHD1

LHD2a

Total

 

Public (n = 257)

NGO (n = 42)

Public (n = 50)

349

1. Not eligible (No chronic condition, No capacity)

79 (31%)

9 (21.4%)

15 (25.4%)

103 (28.8%)

2. Not interested in

67 (26%)

27 (64.3%)

29 (49%)

123 (34.4%)

3. Feels too young

3 (1.2%)

0

0

3 (0.8%)

4. Transferred to or in hospital

5 (1.9%)

0

0

5 (1.4%)

5. Too busy

1 (0.4%)

0

0

1 (0.3%)

6. Home Care Service closed

95 (37%)

0

0

95 (26.5%)

7. Too unwell or passed away

5 (1.9%)

3 (7.1%)

0

8 (2.2%)

8. Have all sorted (not sighted)

2 (%)

3 (7.1%)

13 (22%)

18 (5.0%)

9. Palliative care

0

0

2 (3.4%)

2 (0.6%)

Total

257 (100%)

42 (100%)

59 (100%)

358 (100%)

  1. LHD2a: All clients (n = 21) in NGO community setting in LHD2 have accepted ACP Service (See Table 4). SDM Substitute Decision Maker, ACD Advance Care Directive