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Table 4 Number and percentage of respondents who endorsed each item

From: Development and preliminary evaluation of a novel physician-report tool for assessing barriers to providing care to autistic patients

 

Very often

N(%)

Often

N(%)

Sometimes

N(%)

Rarely

N(%)

Never

N(%)

Patient-related barriers

 Challenging behaviours exhibited by the patient

17 (8.4)

94 (46.3)

62 (30.5)

23 (11.3)

7 (3.4)

 The patient’s reactivity to the healthcare environment

28 (13.8)

108 (53.2)

42 (20.7)

17 (8.4)

8 (3.9)

 There are communication difficulties

57 (28.1)

92 (45.3)

31 (15.3)

17 (8.4)

6 (3)

 Lengthy waiting room times for patients on the autism spectrum

36 (17.7)

67 (33)

50 (24.6)

23 (11.3)

27 (13.3)

 The patient’s use of outside providers

24 (11.8)

67 (33)

56 (27.6)

18 (8.9)

38 (18.7)

 Consultations are too short to accommodate patients on the autism spectrum

38 (18.7)

68 (33.5)

53 (26.1)

21 (10.3)

23 (11.3)

HCP/Family-related barriers

 There is a lack of clarity regarding GP remit/referral.

26 (12.8)

55 (27.1)

50 (24.6)

22 (10.8)

50 (24.6)

 There are financial disincentives due to the need for additional time with the patient

19 (9.4)

42 (20.7)

49 (24.1)

28 (13.8)

65 (32)

 The patients’ family/caregivers are sceptical of conventional medicine (e.g., vaccines)

9 (4.4)

29 (14.3)

63 (31)

59 (29.1)

43 (21.2)

 There is a lack of providers willing to work with patients on the autism spectrum

21 (10.3)

46 (22.7)

51 (25.1)

33 (16.3)

52 (25.6)

 Family/caregiver involvement makes provision of healthcare to patients on the autism spectrum more complex

22 (10.8)

39 (19.2)

56 (27.6)

50 (24.6)

36 (17.7)

 I prefer to avoid working with patients on the autism spectrum

12 (5.9)

25 (12.3)

48 (23.6)

59 (29.1)

59 (29.1)

System-related barriers

 There is a lack of support for patients/families

70 (34.5)

82 (40.4)

25 (12.3)

15 (7.4)

11 (5.4)

 The physical environment in healthcare settings is unsuitable

53 (26.1)

87 (42.9)

38(18.7)

14 (6.9)

11 (5.4)

 Lack of own knowledge for working with patients on the autism spectrum

34 (16.7)

96 (47.3)

40 (19.7)

23 (11.3)

10 (4.9)

 There is a lack of coordination between services

65 (32)

77 (37.9)

29 (14.3)

19 (9.4)

13 (6.4)

 There are shortages of medical and non-medical services for people on the autism spectrum

45 (22.2)

100 (49.3)

29 (14.3)

13 (6.4)

16 (7.9)