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Table 1 Patient and caregiver survey sections and numbers of items

From: Development and psychometric properties of surveys to assess patient and family caregiver experience with care transitions

Patient Survey

(60 items)

Time 1 & Time 2 Caregiver

Surveys

(56 items each)

Description of Similar Item Content in the Patient Survey and Time 1/Time2 Caregiver Surveys

12 items

9 items

Introduction (beginning)/Background (end)

• Questions confirming respondent eligibility (patients/caregivers). Patient/caregiver sociodemographic and other characteristics.

13 items

(14 in Spanish version)

15 items

(16 in Spanish version)

In the Hospital (Single-item measures)

• Transitional care services/components received in the hospital, such as whether they were told or shown what to do at home, understood what to do, practiced, received information, felt ready for discharge (1 = Yes, definitely, 2 = Yes, somewhat, 3 = No), and had a doctor’s appointment scheduled before leaving the hospital (1 = Yes, 2 = No).

• Healthcare professional communication items asking if healthcare professionals explained things in a way they could understand, cared for them as a person, and if they trusted the judgment of the healthcare professionals (1 = Yes, definitely, 2 = Yes, somewhat, 3 = No).

26 items

25 items

Since the Patient Has Been Home (Single-item measures)

• Transitional care services/components received since the patient has been home, such as medical supplies or equipment, physical or occupational therapy, or home visits from a healthcare professional (1 = Yes, 2 = No).

• If the patient took medications, if they had contact information for healthcare professionals, and if they had help managing their/ the patient’s care (1 = Yes, 2 = No).

• Healthcare professional communication, if they trusted the judgment of the healthcare professionals, and received conflicting information from healthcare professionals (1 = Yes, definitely, 2 = Yes, somewhat, 3 = No).

4 items

4 items

Overall Quality of Transitional Care (Multi-item outcome composite measure)

• Ratings of the quality of care the patient received in the hospital, at home, and from healthcare professionals (1 = Poor to 5 = Excellent), including whether healthcare professionals were there for patients/caregivers as much as they needed (0 = No, 1 = Yes, somewhat, 2 = Yes, definitely).

5 items

–

Patient Overall Health (Multi-item outcome composite measure)

• Patient-reported items from the adult version of PROMIS® (Cella et al., 2012; Hays et al., 2009; Yu et al., 2002), including physical health, mental or emotional health, sleep (1 = Poor to 5 = Excellent), bodily pain (1 = Not at all to 5 = All the time), and ability to carry out everyday activities in the past week (1 = Not at all to 5 = Completely).

–

3 items

Caregiver Effort/Stress (Multi-item outcome composite measure)

• Caregiver-reported amount of effort (1 = No effort to 4 = A little effort) and stress (1 = Not at all stressful to 4 = Very stressful) involved in caring for the patient since the patient has been home, and whether the effort of taking care of the patient since the hospital has changed (1 = A lot easier, 3 = About the same, 5 = A lot harder).