Domain and theme | Frequency | Illustrative Quotation |
---|---|---|
Emotional impact of ICD | ||
Sense of gratitude, safety and reassurance | 42 | ‘Massive impact – grateful’. ‘Knowing I have my ICD has given me peace of mind to know I have a life saving device as my guardian angel’. ‘Without doubt it has removed the fear of a fatal heart incident’ |
Increased anxiety and sense of vulnerability | 15 | ‘The reality of having a heart condition is difficult enough, the thought of the ICD shocking me!’ ‘It has increased my consciousness of my vulnerability’. |
Adjustment over time | 10 | ‘At first you notice the weight but now I forgot it is even there’. ‘While after fitting feeling of resenting ICD for a week or two’. |
Functional and Role Changes | ||
Self-identity and role changes | 5 | ‘Losing my core role, reduction in income and quality of life. Loss of control over my working life’. ‘I feel it has taken part of my freedom away’. |
Improved functioning and quality of life | 18 | ‘I have improved health and well-being, less breathlessness, less tired, increased energy’. ‘It has improved my general wellbeing’. ‘Improved my stamina. I get tired but not exhausted anymore.’ |
Physical discomfort | 15 | ‘The size of it- BIG. It is still sore and uncomfortable. Restricts my movements and I keep ‘tweaking’ it when I move my arm in certain ways’. ‘My sleep is poor due to discomfort of the ICD’ |
Practical adjustments | 37 | ‘Restriction with enjoying certain activities, i.e. grand-children. Reduces your activity level’. ‘No football, no cricket’. ‘Airports, can’t go through scanning machines, extra time needed to go through.’ |
Minimal consequences | 63 | ‘Hasn’t impacted on my life, got on with life’. ‘I don’t really notice it much (forget it’s in)’ ‘I feel no difference.’ |