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Table 4 Findings presented as the overall theme, categories, and subcategories

From: Person-centered dementia care in home care services – highly recommended but still challenging to obtain: a qualitative interview study

Theme

It is difficult for people with dementia to understand and influence home care services, but the services facilitate the possibility to stay at home and feel safe with support from staff.

Categories

Feelings of security despite reduced comprehension of the services

The quality of the relation with the staff seemed more important than continuity

The desire to live in their own home seemed to increase their effort to adapt to the home care service

Experiences of limited opportunities for shared decision-making about needs and care

Subcategories

To be taken care of

To leave the responsibility to others

Trust in the service

It is not clear why they are coming

Relationship to staff

The value of knowing the staff

Busyness in the home care service

The experience of a pleasant staff

A desire to live at home

Accepting the service as it is

Continuity of service less important

A desire for inclusion in decisions

Decisions are made without the patient’s participation

I think I can participate if I want to