Table 4 Information about elders and their caregivers from ATSP and nursing home databases and survey results
Caregivers | Elders | |||||||
|---|---|---|---|---|---|---|---|---|
n | % | n | % | |||||
Demographics | Demographic and personal | |||||||
Gender | F | 40 | 78% | Gender | F | 37 | 73% | |
M | 11 | 22% | M | 14 | 27% | |||
Age | < 55 | 17 | 33% | Age | < 70 | 6 | 12% | |
55–64 | 17 | 33% | 70–79 | 11 | 22% | |||
> = 65 | 15 | 29% | 80–89 | 21 | 41% | |||
No answer | 2 | 4% | > = 90 | 13 | 25% | |||
Education | Primary School | 31 | 61% | Education | Primary School | 37 | 73% | |
High School | 19 | 37% | High School | 1 | 2% | |||
Higher | 1 | 2% | No response | 13 | 25% | |||
Marital status | Married | 43 | 84% | Yearly Income | Low | 20 | 39% | |
Unmarried | 1 | 2% | Medium | 9 | 18% | |||
Divorced/Separated | 4 | 8% | High | 0 | 0% | |||
Widower | 3 | 6% | No response | 22 | 43% | |||
Working condition | Employed | 15 | 29% | Number of people living with elder | Alone | 21 | 41% | |
Unemployed | 16 | 31% | One person | 24 | 47% | |||
Retired | 19 | 37% | More than two people | 6 | 12% | |||
No response | 1 | 2% | No response | 1 | 2% | |||
Caregivers’s degree of kinship | Husband/wife | 6 | 12% | |||||
Son(s) | 35 | 69% | ||||||
Brother/sisters | 4 | 8% | ||||||
n | avg. | % | Other | 6 | 12% | |||
Psychosocial measures | Service providers | ATSP | 31 | 61% | ||||
Caregiving Health Engagement Scale (CHE-s) | 51 | 2.66 | 67% | Nursing home | 20 | 39% | ||
No answer | 3 | – | Clinical condition | |||||
Caregiver Burden Scale | Time-Dependence Burden | 48 | 16.51 | 83% | Main pathologies | Cerebrovascular disease | 4 | 8% |
Developmental Burden | 48 | 12.96 | 65% | Arterial hypertension | 8 | 16% | ||
Physical Burden | 48 | 10.33 | 52% | Dementia or Alzheimer | 14 | 27% | ||
Social Burden | 48 | 5.92 | 30% | Diabetes type II | 8 | 16% | ||
Emotional Burden | 48 | 3.22 | 16% | Heart failure | 6 | 12% | ||
No response | 3 | – | Myocardiopathy | 7 | 14% | |||
Caregiver Self-efficiency Scale | Obtaining Respite | 47 | 5.93 | 59% | Other | 4 | 8% | |
Responding to Disruptive Patient Behaviours | 47 | 7.16 | 72% | Civil invalidity | Yes | 47 | 92% | |
Controlling Upsetting Thoughts | 47 | 6.81 | 68% | No | 4 | 8% | ||
No response | 4 | – | Presence of chronic diseases | Yes | 30 | 59% | ||
Health literacy scale | 48 | 1.23 | 41% | No | 21 | 41% | ||
No response | 3 | – | Service usage characteristics | |||||
Caregiver Need Assessment Scale | 47 | 28.23 | 55% | Number of other services activated | Yes | 9 | 18% | |
No response | 4 | – | No | 40 | 78% | |||
Organizational measures | No response | 2 | 4% | |||||
Satisfaction | ATSP | 29 | 5.77 | 82% | Number of care activities activated | One service | 5 | 10% |
Nursing homes | 18 | 5.71 | 82% | Two services | 22 | 43% | ||
No response | 4 | – | More than two services | 24 | 47% | |||
Economic measures | Number of care service hours per month | < 15 h per month | 33 | 65% | ||||
Out-of-pocket expenditure | 51 | 567 € | /month | ≥ 15 h per month | 17 | 33% | ||
Hours of informal caregiving | 51 | 326 h | /month | No response | 1 | 2% | ||
Unpaid time costs | 51 | €2296 | /month | |||||