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Table 1 Sample description of participants

From: The long shadow of childhood cancer: a qualitative study on insurance hardship among survivors of childhood cancer

Childhood cancer survivors

Total

N = 28 (100%)

Sociodemographic characteristics

 Gender

  Male

9 (32.1)

  Female

19 (67.9)

 Age at study

  ≤25years

11 (39.3)

  26-30 years

5 (17.9)

  31-35 years

4 (14.3)

  >35 years

8 (28.6)

 Nationality

  Swiss

24 (85.7)

  Swiss and other nationality

4 (14.3)

 Currently in a relationship

  Yes

6 (21.4)

  No

22 (78.6)

 Children

  Yes

6 (21.4)

  No

22 (78.6)

 Education

  Compulsory schooling

4 (14.3)

  Vocational training

13 (46.4)

  Upper secondary

6 (21.4)

  University degree

5 (17.9)

 Employment status

  Employed

24 (85.7)

  Unemployed

4 (14.3)

Clinical characteristics

 Diagnosis

  Leukemia

10 (35.7)

  Lymphoma

5 (17.9)

  CNS tumor

3 (10.7)

  Othera

10 (35.7)

 Age at diagnosis

  0-5 years

7 (25.0)

  6-11 years

10 (35.7)

  12-18 years

11 (39.3)

 Treatment

  Surgery only or chemotherapyb

15 (53.6)

  Radiationc

10 (35.7)

  Bone marrow transplantationd

3 (10.7)

 Time since end of treatmente

  ≤5 years

3 (11.1)

  6-15 years

8 (29.6)

  16-25 years

6 (22.2)

  >25 years

10 (37.0)

 Late effects

  Yes

18 (64.3)

  No

10 (35.7)

 Type of late effectse

  Physical

12 (75.0)

  Physical and psychological

4 (25.0)

 Follow-up attendance

  Yes

15 (53.6)

  No, completed

13 (46.4)

 Relapse

  Yes

7 (25.0)

  No

21 (75.0)

 Second malignancy

  Yes

6 (21.4)

  No

22 (78.6)

Mean (years, range)

 Age at study

31.4 (18-55)

 Age at diagnosis

9.3 (0.5-16)

 Time since end of treatment

19.1 (2-38)

Experts

Total

N = 3 (100%)

Sociodemographic characteristics

 Gender

  Male

2 (66.6)

  Female

1 (33.3)

Mean (years, range)

 Age at study

51.6 (41-56)

 Working experience

26.3 (21-33)

  1. aOther includes neuroblastoma, renal tumor, bone tumor, soft tissue sarcoma, thyroid cancer, germ cell cancer and histiocytosis
  2. bHas not included radiation
  3. cMay have included surgery and/or chemotherapy
  4. dMay have included surgery, chemotherapy and/or radiation
  5. eMissing values