Construct | Item description | Asked only of those completing testing | Assessment point(s) | |
---|---|---|---|---|
4-week | 12-month | |||
Perceptions of genetic services | ||||
 Satisfaction with genetic counseling | 6 items to assess participant satisfaction with the process and content of genetic counseling [123] |  | X |  |
 Perceptions of genetic counseling | 4 items assessing perceptions of genetic counseling and interactions with genetic counselor [124] |  | X |  |
 Perceptions of clarity and helpfulness of information | 2 items assessing perceptions of understandability and helpfulness of information received during genetic counseling [125] and 2 items on ability to ask questions |  | X |  |
 Financial aspects of genetic testing | 3 items assessing perceptions of affordability of genetic testing and insurance and billing concerns |  | X |  |
Cognitive responses | ||||
 Recall and interpretation | 6 items assessing whether participants recalled their genetic test result and how they interpreted that result in terms of cancer risks [126] | X | X | X |
 Perceptions of genetic test results | 3 items assessing perceptions of clarity, time spent thinking about results, and surprise with results [125] | X | X | X |
 Perceived utility | 7 item measure assessing perceived utility of genetic test results [127] | X | X |  |
 Decision regret | 5 item measure assessing regret related to decision to receive genetic testing or not [128] |  | X |  |
 Cancer risk perceptions | 6 items assessing absolute and relative risk perceptions for breast, colon, and (if female) ovarian cancer |  | X | X |
 Genetic knowledge | 16 item measure assessing genetic knowledge related to multigene panel testing [129] |  | X |  |
Emotional responses | ||||
 Distress, uncertainty, and positive experiences | 21 item measure with three subscales (i.e., distress, uncertainty, positive experiences) assessing multidimensional impact of genetic test results [130] | X | X |  |
Behavioral responses | ||||
 Cancer screening | 14 items assessing use of different cancer screening tests in past year |  |  | X |
 Surgical decisions | 1 item assessing surgical procedures to reduce risk of cancer |  |  | X |
 Cancer prevention | 11 items assessing use of cancer prevention approaches in past year |  |  | X |
Communication | ||||
 Communication with health care providers | 2 items assessing whether patient has discussed genetic test results with primary care or other health care provider [125] | X | X | X |
 Communication with family members | 2 items assessing whether patient has discussed genetic test results with family members [125] | X | X | X |
Patient characteristics | ||||
 Sociodemographic characteristics | Assessing educational attainment, race, ethnicity, marital status, household income, zip code, health insurance status, and having a primary care provider |  | X |  |
 Diagnosis with cancer | 1 item assessing diagnosis with cancer in past year |  |  | X |
 Genetic testing | 1 item assessing use of other genetic testing in past year |  |  | X |
 Genetic discrimination | 1 item assessing experiences of discrimination following genetic testing | X |  | X |
 Numeracy | 6 item measure assessing subjective numeracy ability and preferences [131] |  | X |  |
 Health literacy | 3 items assessing patients’ subjective health literacy [132] |  |  | X |
 eHealth literacy | 8 item measure assessing patient’s eHealth literacy [133] |  |  | X |
 Genetic self-efficacy | 3 item measure assessing patients’ confidence in their ability to assess and discuss genetic risk information [134] |  |  | X |
 Health information seeking | 5 items assessing health information seeking through different media and interpersonal channels [135, 136] |  |  | X |
 Health information orientation | 13 items assessing patients’ perceived importance of health [137] |  |  | X |
 Impacts of coronavirus | 10 items assessing the financial, health, and psychological impact of or diagnosis with the coronavirus (COVID-19) [138] |  | X | X |