Skip to main content

Table 3 Items included in 4-week and 12-month follow-up questionnaires

From: Comparing models of delivery for cancer genetics services among patients receiving primary care who meet criteria for genetic evaluation in two healthcare systems: BRIDGE randomized controlled trial

Construct Item description Asked only of those completing testing Assessment point(s)
4-week 12-month
Perceptions of genetic services
 Satisfaction with genetic counseling 6 items to assess participant satisfaction with the process and content of genetic counseling [123]   X  
 Perceptions of genetic counseling 4 items assessing perceptions of genetic counseling and interactions with genetic counselor [124]   X  
 Perceptions of clarity and helpfulness of information 2 items assessing perceptions of understandability and helpfulness of information received during genetic counseling [125] and 2 items on ability to ask questions   X  
 Financial aspects of genetic testing 3 items assessing perceptions of affordability of genetic testing and insurance and billing concerns   X  
Cognitive responses
 Recall and interpretation 6 items assessing whether participants recalled their genetic test result and how they interpreted that result in terms of cancer risks [126] X X X
 Perceptions of genetic test results 3 items assessing perceptions of clarity, time spent thinking about results, and surprise with results [125] X X X
 Perceived utility 7 item measure assessing perceived utility of genetic test results [127] X X  
 Decision regret 5 item measure assessing regret related to decision to receive genetic testing or not [128]   X  
 Cancer risk perceptions 6 items assessing absolute and relative risk perceptions for breast, colon, and (if female) ovarian cancer   X X
 Genetic knowledge 16 item measure assessing genetic knowledge related to multigene panel testing [129]   X  
Emotional responses
 Distress, uncertainty, and positive experiences 21 item measure with three subscales (i.e., distress, uncertainty, positive experiences) assessing multidimensional impact of genetic test results [130] X X  
Behavioral responses
 Cancer screening 14 items assessing use of different cancer screening tests in past year    X
 Surgical decisions 1 item assessing surgical procedures to reduce risk of cancer    X
 Cancer prevention 11 items assessing use of cancer prevention approaches in past year    X
Communication
 Communication with health care providers 2 items assessing whether patient has discussed genetic test results with primary care or other health care provider [125] X X X
 Communication with family members 2 items assessing whether patient has discussed genetic test results with family members [125] X X X
Patient characteristics
 Sociodemographic characteristics Assessing educational attainment, race, ethnicity, marital status, household income, zip code, health insurance status, and having a primary care provider   X  
 Diagnosis with cancer 1 item assessing diagnosis with cancer in past year    X
 Genetic testing 1 item assessing use of other genetic testing in past year    X
 Genetic discrimination 1 item assessing experiences of discrimination following genetic testing X   X
 Numeracy 6 item measure assessing subjective numeracy ability and preferences [131]   X  
 Health literacy 3 items assessing patients’ subjective health literacy [132]    X
 eHealth literacy 8 item measure assessing patient’s eHealth literacy [133]    X
 Genetic self-efficacy 3 item measure assessing patients’ confidence in their ability to assess and discuss genetic risk information [134]    X
 Health information seeking 5 items assessing health information seeking through different media and interpersonal channels [135, 136]    X
 Health information orientation 13 items assessing patients’ perceived importance of health [137]    X
 Impacts of coronavirus 10 items assessing the financial, health, and psychological impact of or diagnosis with the coronavirus (COVID-19) [138]   X X