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Table 3 Items included in 4-week and 12-month follow-up questionnaires

From: Comparing models of delivery for cancer genetics services among patients receiving primary care who meet criteria for genetic evaluation in two healthcare systems: BRIDGE randomized controlled trial

Construct

Item description

Asked only of those completing testing

Assessment point(s)

4-week

12-month

Perceptions of genetic services

 Satisfaction with genetic counseling

6 items to assess participant satisfaction with the process and content of genetic counseling [123]

 

X

 

 Perceptions of genetic counseling

4 items assessing perceptions of genetic counseling and interactions with genetic counselor [124]

 

X

 

 Perceptions of clarity and helpfulness of information

2 items assessing perceptions of understandability and helpfulness of information received during genetic counseling [125] and 2 items on ability to ask questions

 

X

 

 Financial aspects of genetic testing

3 items assessing perceptions of affordability of genetic testing and insurance and billing concerns

 

X

 

Cognitive responses

 Recall and interpretation

6 items assessing whether participants recalled their genetic test result and how they interpreted that result in terms of cancer risks [126]

X

X

X

 Perceptions of genetic test results

3 items assessing perceptions of clarity, time spent thinking about results, and surprise with results [125]

X

X

X

 Perceived utility

7 item measure assessing perceived utility of genetic test results [127]

X

X

 

 Decision regret

5 item measure assessing regret related to decision to receive genetic testing or not [128]

 

X

 

 Cancer risk perceptions

6 items assessing absolute and relative risk perceptions for breast, colon, and (if female) ovarian cancer

 

X

X

 Genetic knowledge

16 item measure assessing genetic knowledge related to multigene panel testing [129]

 

X

 

Emotional responses

 Distress, uncertainty, and positive experiences

21 item measure with three subscales (i.e., distress, uncertainty, positive experiences) assessing multidimensional impact of genetic test results [130]

X

X

 

Behavioral responses

 Cancer screening

14 items assessing use of different cancer screening tests in past year

  

X

 Surgical decisions

1 item assessing surgical procedures to reduce risk of cancer

  

X

 Cancer prevention

11 items assessing use of cancer prevention approaches in past year

  

X

Communication

 Communication with health care providers

2 items assessing whether patient has discussed genetic test results with primary care or other health care provider [125]

X

X

X

 Communication with family members

2 items assessing whether patient has discussed genetic test results with family members [125]

X

X

X

Patient characteristics

 Sociodemographic characteristics

Assessing educational attainment, race, ethnicity, marital status, household income, zip code, health insurance status, and having a primary care provider

 

X

 

 Diagnosis with cancer

1 item assessing diagnosis with cancer in past year

  

X

 Genetic testing

1 item assessing use of other genetic testing in past year

  

X

 Genetic discrimination

1 item assessing experiences of discrimination following genetic testing

X

 

X

 Numeracy

6 item measure assessing subjective numeracy ability and preferences [131]

 

X

 

 Health literacy

3 items assessing patients’ subjective health literacy [132]

  

X

 eHealth literacy

8 item measure assessing patient’s eHealth literacy [133]

  

X

 Genetic self-efficacy

3 item measure assessing patients’ confidence in their ability to assess and discuss genetic risk information [134]

  

X

 Health information seeking

5 items assessing health information seeking through different media and interpersonal channels [135, 136]

  

X

 Health information orientation

13 items assessing patients’ perceived importance of health [137]

  

X

 Impacts of coronavirus

10 items assessing the financial, health, and psychological impact of or diagnosis with the coronavirus (COVID-19) [138]

 

X

X