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Table 3 Preferences for timing of diagnosis disclosure (n = 217)

From: Attitude toward dementia and preferences for diagnosis in Japanese health service consumers

  Self Partner/Spouse p
  n % n %
As soon as possible 208 95.9 110 67.5 < 0.001
Waiting 9 4.1 53 32.5  
Got worse 3 33.3 12 22.6  
Necessary 4 44.4 24 45.3  
Not know at all 2 22.2 17 32.1  
Reasons of the decisiona
 As soon as possibleb (n = 208) (n = 110)  
 Make the most of life (e.g. ‘bucket list’) 97 46.6 62 56.4 0.099
 Collect memories 50 24.0 39 35.5 0.031
 Work on my/their relationships 85 40.9 41 37.3 0.533
 Tell loved ones my/their situation 79 38.0 41 37.3 0.901
 Come to terms with the diagnosis 141 67.8 74 67.3 0.926
 Be involved in decisions about my/their future care 105 50.5 58 52.7 0.703
 Make financial arrangements for with (their) family 65 31.3 31 28.2 0.571
 Access treatments and support 125 60.1 65 59.1 0.862
Other 17 8.2 4 3.6 0.121
Waitingc (n = 9) (n = 53)  
There is no cure / no benefit of knowing 3 33.3 9 17.0 0.356
Risk of incorrect diagnosis 0 0 5 9.4 1.000
It would cause me/them to feel depressed 4 44.4 36 67.9 0.259
Fear that people would treat me/them differently 1 11.1 11 20.8 0.675
To avoid unnecessary worry 6 66.7 39 73.6 0.696
To avoid putting strain on my/their relationships 4 44.4 11 20.8 0.201
Fear that knowing the diagnosis might make symptoms progress faster 2 22.2 17 32.1 0.709
So I/they could live normally for as long as possible 6 66.7 40 75.5 0.683
Other 0 0 2 3.8 1.000
It would make them feel bad about themselves N/A N/A 18 34.0  
  1. aProportions do not add to 100 % as participants could select more than one response, b Chi-square test, c Fisher’s exact test