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Table 1 Characteristics of informal caregivers by five involvement indicators (N = 1000)

From: Informal caregivers during the COVID-19 pandemic perceive additional burden: findings from an ad-hoc survey in Germany

Background &

Context

Total % (n)

Main Caregiver

Time required

Level of care

Dementia

Professional help

Number of involvement indicators met

yes

63.2%

(n = 632)

no

35.8%

(n = 358)

Short expenditure of time

84%

(n = 840)

High expenditure of time

16%

(n = 160)

Minor Level

47.7%

(n = 477)

Serious

Level

50.8%

(n = 508)

yes

31.5%

(n = 315)

no

67.3%

(n = 673)

yes

52.6%

(n = 526)

no

47.4%

(n = 474)

Mean (SD)

Gender

 Female

54.7 (547)

66.1 (357)

51.1 (183)

54.5 (458)

55.6 (89)

57.0 (272)

52.6 (267)

51.1 (161)

56 (377)

52.9 (278)

56.8 (269)

2.1 (1.1)

 Male

45.3 (453)

33.9 (275)

48.9 (175)

45.5 (382)

44.4 (71)

43.0 (205)

47.4 (241)

48.9 (154)

44 (296)

47.1 (248)

43.2 (205)

2.1 (1.1)

Age (years)

 40–49

12.0 (120)

10.9 (69)

14.0 (50)

13.1 (110)

6.3 (10)

10.9 (52)

13.0 (66)

10.8 (34)

12.6 (85)

11.8 (62)

12.2 (58)

2.0 (1.0)

 50–59

38.0 (380)

35.1 (222)

43.3 (155)

41.2 (346)

21.3 (34)

40.5 (193)

36.2 (184)

42.5 (134)

36.3 (244)

39.7 (209)

36.1 (171)

2.0 (1.0)

 60–69

31.9 (319)

31.8 (201)

31.8 (114)

31.8 (267)

32.5 (53)

31.2 (149)

31.9 (162)

27.6 (87)

33.6 (226)

33.5 (176)

30.2 (143)

2.0 (1.2)

 70–79

16.0 (160)

19.3 (122)

10.1 (36)

11.9 (100)

37.5 (60)

15.1 (72)

16.9 (86)

17.1 (54)

15.5 (104)

13.5 (71)

18.8 (89)

2.6 (1.3)

  > 80

2.1 (21)

2.8 (18)

0.8 (3)

2.0 (17)

2.5 (4)

2.3 (11)

2.0 (10)

1.9 (6)

2.1 (14)

1.5 (8)

2.7 (13)

2.4 (1.1)

 Mean (SD)

60.0 (9.3)

61.1 (9.6)

58.2 (8.5)

59.1 (9.0)

64.8 (9.7)

60.0 (9.2)

60.1 (9.5)

59.9 (9.3)

60.0 (9.3)

59.6 (9.0)

60.5 (9.7)

2.1 (1.1)

Education Level

 low

13.7 (137)

14.1 (89)

12.6 (45)

11.9 (99)

23.8 (38)

12.4 (59)

14.4 (73)

14.0 (44)

13.4 (90)

13.3 (70)

14.1 (67)

2.3 (1.2)

 medium

48.6 (486)

47.5 (300)

51.1 (183)

50.5 (424)

38.8 (62)

52.2 (249)

45.5 (231)

48.9 (154)

48.4 (326)

47.3 (249)

50.0 (237)

2.0 (1.1)

 high

35.5 (355)

36.6 (231)

33.5 (120)

35.5 (298)

35.6 (57)

33.3 (159)

38.0 (193)

35.2 (111)

35.8 (241)

36.5 (192)

34.4 (163

2.1 (1.1)

 not specified

2.2 (22)

1.9 (12)

2.8 (10)

2.3 (19)

1.9 (3)

2.1 (10)

2.2 (11)

1.9 (6)

2.4 (16)

2.9 (15)

1.5 (7)

 

Household size (including caregiver)

 1 person

17.8 (178)

16.1 (102)

20.1 (72)

19.8 (166)

7.5 (12)

20.1 (96)

15.4 (78)

14.0 (44)

19.5 (131)

20.0 (105)

15.4 (73)

1.7 (0.9)

 2 persons

51.7 (517)

54.6 (345)

46.6 (167)

49.2 (413)

65.0 (104)

53.5 (255)

49.4 (251)

46.0 (145)

54.2 (365)

49.8 (262)

53.8 (255)

2.1 (1.2)

 3 persons

18.0 (118)

17.7 (112)

18.7 (67)

17.6 (148)

20.0 (32)

15.5 (74)

20.9 (106)

23.8 (75)

15.5 (104)

16.2 (85)

20.0 (95)

2.3 (1.1)

  > 4 persons

11.6 (116)

10.6 (67)

13.7 (49)

12.5 (105)

6.9 (11)

9.4 (45)

14.0 (71)

16.2 (51)

9.5 (64)

13.3 (70)

9.7 (46)

2.1 (1.1)

 not specified

0.9 (9)

0.9 (6)

0.8 (3)

1.0 (8)

0.6 (1)

1.5 (7)

0.4 (2)

0.0 (0)

1.3 (9)

0.8 (4)

1.1 (5)

 

Living conditions of care recipient

 alone

46.9 (469)

49.5 (313)

41.3 (148)

52.9 (444)

15.6 (25)

60.2 (287)

33.5 (170)

33.7 (106)

52.9 (356)

53.6 (282)

39.5 (187)

1.7 (1.0)

 with caregiver

29.6 (296)

40.2 (254)

11.5 (41)

20.2 (170)

78.8 (126)

24.1 (115)

35.4 (180)

37.8 (119)

26.0 (175)

21.3 (112)

38.8 (184)

2.9 (1.1)

 with another person as caregiver

23.5 (235)

10.3 (65)

47.2 (169)

26.9 (226)

5.6 (9)

15.7 (75)

31.1 (158)

28.6 (90)

21.1 (142)

25.1 (132)

21.7 (103)

1.8 (0.8)

Occupation

 employed

56.1 (561)

50.8 (321)

65.6 (235)

60.8 (511)

31.3 (50)

57.4 (274)

54.7 (278)

59.4 (187)

55.0 (370)

59.3 (312)

52.5 (249)

1.9 (1.1)

  < 30 h/week

29.2 (164)

32.4 (104)

24.7 (58)

28.0 (143)

42.0 (21)

27.0 (74)

32.0 (89)

35.3 (66)

25.9 (96)

25.3 (79)

34.1 (85)

1.8 (1.2)

  > 30 h/week

70.4 (395)

67.0 (215)

75.3 (177)

71.6 (366)

58.0 (29)

72.6 (199)

67.7 (188)

64.2 (120)

73.8 (273)

74.4 (232)

65.5 (163)

2.2 (1.0)

 not specified

0.4 (2)

0.6 (2)

0.0 (0)

0.4 (2)

0.0 (0)

0.4 (1)

0.4 (1)

0.5 (1)

0.3 (1)

0.3 (1)

0.4 (1)

2.5 (0.7)

 unemployed

43.3 (433)

49.2 (311)

34.4 (123)

39.2 (329)

68.8 (110)

42.6 (203)

45.3 (230)

40.6 (128)

45.0 (303)

40.7 (214)

47.5 (225)

2.3 (1.2)

Income per month (€)

  < 1000

1.9 (19)

1.9 (12)

1.4 (5)

2 (17)

1.3 (2)

2.9 (14)

0.8 (4)

2.2 (7)

1.8 (12)

1.5 (8)

2.3 (11)

1.9 (0.9)

 1000 – 2500

28.0 (280)

28.6 (181)

26.3 (94)

27.7 (233)

29.4 (47)

27.7 (132)

27.6 (140)

26.0 (82)

28.7 (193)

28.7 (151)

27.2 (129)

2.1 (1.1)

 2500 – 4000

37.1 (371)

37.5 (237)

37.4 (134)

36.2 (304)

41.9 (67)

36.9 (176)

37.8 (192)

38.1 (120)

36.8 (248)

35.7 (188)

38.6 (183)

2.2 (1.2)

  > 4000

22.9 (229)

20.9 (132)

26.3 (94)

24.3 (204)

15.6 (25)

20.3 (97)

25.4 (129)

25.4 (80)

22.0 (148)

25.3 (133)

20.3 (96)

2.0 (1.1)

 not specified

10.1 (101)

11.1 (70)

8.7 (31)

9.8 (82)

11.9 (19)

12.2 (58)

8.5 (43)

8.3 (26)

10.7 (72)

8.7 (46)

11.6 (55)

 

Population of home town

  < 5000

16.5 (165)

16.0 (101)

17.6 (63)

15.4 (129)

22.5 (36)

14.3 (68)

18.7 (95)

16.8 (53)

16.3 (110)

16.0 (84)

17.1 (81)

2.2 (1.2)

 5000 - < 20,000

27.9 (279)

28.0 (177)

27.4 (98)

27.3 (229)

31.3 (50)

28.3 (135)

27.6 (140)

29.2 (92)

27.2 (183)

28.7 (151)

27.0 (128)

2.1 (1.2)

 20,000 - < 100,000

27.2 (272)

26.1 (165)

29.3 (105)

27.6 (232)

25.0 (40)

26.2 (125)

28.0 (142)

26.3 (83)

27.9 (188)

28.3 (149)

25.9 (123)

2.0 (1.1)

 100,000 - < 500,000

14.7 (147)

14.9 (94)

14.5 (52)

14.9 (125)

13.8 (22)

14.0 (67)

15.4 (78)

15.9 (50)

14.1 (95)

12.5 (66)

17.1 (81)

2.2 (1.2)

  > 500,000

13.7 (137)

15.0 (95)

11.2 (40)

14.9 (125)

7.5 (12)

17.2 (82)

10.4 (53)

11.7 (37)

14.4 (97)

14.4 (76

12.9 (61)

1.9 (1.1)

  1. Note. SD = standard deviation, % = percent, n = number
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