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Table 1 Characteristics of informal caregivers by five involvement indicators (N = 1000)

From: Informal caregivers during the COVID-19 pandemic perceive additional burden: findings from an ad-hoc survey in Germany

Background &
Context
Total % (n) Main Caregiver Time required Level of care Dementia Professional help Number of involvement indicators met
yes
63.2%
(n = 632)
no
35.8%
(n = 358)
Short expenditure of time
84%
(n = 840)
High expenditure of time
16%
(n = 160)
Minor Level
47.7%
(n = 477)
Serious
Level
50.8%
(n = 508)
yes
31.5%
(n = 315)
no
67.3%
(n = 673)
yes
52.6%
(n = 526)
no
47.4%
(n = 474)
Mean (SD)
Gender
 Female 54.7 (547) 66.1 (357) 51.1 (183) 54.5 (458) 55.6 (89) 57.0 (272) 52.6 (267) 51.1 (161) 56 (377) 52.9 (278) 56.8 (269) 2.1 (1.1)
 Male 45.3 (453) 33.9 (275) 48.9 (175) 45.5 (382) 44.4 (71) 43.0 (205) 47.4 (241) 48.9 (154) 44 (296) 47.1 (248) 43.2 (205) 2.1 (1.1)
Age (years)
 40–49 12.0 (120) 10.9 (69) 14.0 (50) 13.1 (110) 6.3 (10) 10.9 (52) 13.0 (66) 10.8 (34) 12.6 (85) 11.8 (62) 12.2 (58) 2.0 (1.0)
 50–59 38.0 (380) 35.1 (222) 43.3 (155) 41.2 (346) 21.3 (34) 40.5 (193) 36.2 (184) 42.5 (134) 36.3 (244) 39.7 (209) 36.1 (171) 2.0 (1.0)
 60–69 31.9 (319) 31.8 (201) 31.8 (114) 31.8 (267) 32.5 (53) 31.2 (149) 31.9 (162) 27.6 (87) 33.6 (226) 33.5 (176) 30.2 (143) 2.0 (1.2)
 70–79 16.0 (160) 19.3 (122) 10.1 (36) 11.9 (100) 37.5 (60) 15.1 (72) 16.9 (86) 17.1 (54) 15.5 (104) 13.5 (71) 18.8 (89) 2.6 (1.3)
  > 80 2.1 (21) 2.8 (18) 0.8 (3) 2.0 (17) 2.5 (4) 2.3 (11) 2.0 (10) 1.9 (6) 2.1 (14) 1.5 (8) 2.7 (13) 2.4 (1.1)
 Mean (SD) 60.0 (9.3) 61.1 (9.6) 58.2 (8.5) 59.1 (9.0) 64.8 (9.7) 60.0 (9.2) 60.1 (9.5) 59.9 (9.3) 60.0 (9.3) 59.6 (9.0) 60.5 (9.7) 2.1 (1.1)
Education Level
 low 13.7 (137) 14.1 (89) 12.6 (45) 11.9 (99) 23.8 (38) 12.4 (59) 14.4 (73) 14.0 (44) 13.4 (90) 13.3 (70) 14.1 (67) 2.3 (1.2)
 medium 48.6 (486) 47.5 (300) 51.1 (183) 50.5 (424) 38.8 (62) 52.2 (249) 45.5 (231) 48.9 (154) 48.4 (326) 47.3 (249) 50.0 (237) 2.0 (1.1)
 high 35.5 (355) 36.6 (231) 33.5 (120) 35.5 (298) 35.6 (57) 33.3 (159) 38.0 (193) 35.2 (111) 35.8 (241) 36.5 (192) 34.4 (163 2.1 (1.1)
 not specified 2.2 (22) 1.9 (12) 2.8 (10) 2.3 (19) 1.9 (3) 2.1 (10) 2.2 (11) 1.9 (6) 2.4 (16) 2.9 (15) 1.5 (7)  
Household size (including caregiver)
 1 person 17.8 (178) 16.1 (102) 20.1 (72) 19.8 (166) 7.5 (12) 20.1 (96) 15.4 (78) 14.0 (44) 19.5 (131) 20.0 (105) 15.4 (73) 1.7 (0.9)
 2 persons 51.7 (517) 54.6 (345) 46.6 (167) 49.2 (413) 65.0 (104) 53.5 (255) 49.4 (251) 46.0 (145) 54.2 (365) 49.8 (262) 53.8 (255) 2.1 (1.2)
 3 persons 18.0 (118) 17.7 (112) 18.7 (67) 17.6 (148) 20.0 (32) 15.5 (74) 20.9 (106) 23.8 (75) 15.5 (104) 16.2 (85) 20.0 (95) 2.3 (1.1)
  > 4 persons 11.6 (116) 10.6 (67) 13.7 (49) 12.5 (105) 6.9 (11) 9.4 (45) 14.0 (71) 16.2 (51) 9.5 (64) 13.3 (70) 9.7 (46) 2.1 (1.1)
 not specified 0.9 (9) 0.9 (6) 0.8 (3) 1.0 (8) 0.6 (1) 1.5 (7) 0.4 (2) 0.0 (0) 1.3 (9) 0.8 (4) 1.1 (5)  
Living conditions of care recipient
 alone 46.9 (469) 49.5 (313) 41.3 (148) 52.9 (444) 15.6 (25) 60.2 (287) 33.5 (170) 33.7 (106) 52.9 (356) 53.6 (282) 39.5 (187) 1.7 (1.0)
 with caregiver 29.6 (296) 40.2 (254) 11.5 (41) 20.2 (170) 78.8 (126) 24.1 (115) 35.4 (180) 37.8 (119) 26.0 (175) 21.3 (112) 38.8 (184) 2.9 (1.1)
 with another person as caregiver 23.5 (235) 10.3 (65) 47.2 (169) 26.9 (226) 5.6 (9) 15.7 (75) 31.1 (158) 28.6 (90) 21.1 (142) 25.1 (132) 21.7 (103) 1.8 (0.8)
Occupation
 employed 56.1 (561) 50.8 (321) 65.6 (235) 60.8 (511) 31.3 (50) 57.4 (274) 54.7 (278) 59.4 (187) 55.0 (370) 59.3 (312) 52.5 (249) 1.9 (1.1)
  < 30 h/week 29.2 (164) 32.4 (104) 24.7 (58) 28.0 (143) 42.0 (21) 27.0 (74) 32.0 (89) 35.3 (66) 25.9 (96) 25.3 (79) 34.1 (85) 1.8 (1.2)
  > 30 h/week 70.4 (395) 67.0 (215) 75.3 (177) 71.6 (366) 58.0 (29) 72.6 (199) 67.7 (188) 64.2 (120) 73.8 (273) 74.4 (232) 65.5 (163) 2.2 (1.0)
 not specified 0.4 (2) 0.6 (2) 0.0 (0) 0.4 (2) 0.0 (0) 0.4 (1) 0.4 (1) 0.5 (1) 0.3 (1) 0.3 (1) 0.4 (1) 2.5 (0.7)
 unemployed 43.3 (433) 49.2 (311) 34.4 (123) 39.2 (329) 68.8 (110) 42.6 (203) 45.3 (230) 40.6 (128) 45.0 (303) 40.7 (214) 47.5 (225) 2.3 (1.2)
Income per month (€)
  < 1000 1.9 (19) 1.9 (12) 1.4 (5) 2 (17) 1.3 (2) 2.9 (14) 0.8 (4) 2.2 (7) 1.8 (12) 1.5 (8) 2.3 (11) 1.9 (0.9)
 1000 – 2500 28.0 (280) 28.6 (181) 26.3 (94) 27.7 (233) 29.4 (47) 27.7 (132) 27.6 (140) 26.0 (82) 28.7 (193) 28.7 (151) 27.2 (129) 2.1 (1.1)
 2500 – 4000 37.1 (371) 37.5 (237) 37.4 (134) 36.2 (304) 41.9 (67) 36.9 (176) 37.8 (192) 38.1 (120) 36.8 (248) 35.7 (188) 38.6 (183) 2.2 (1.2)
  > 4000 22.9 (229) 20.9 (132) 26.3 (94) 24.3 (204) 15.6 (25) 20.3 (97) 25.4 (129) 25.4 (80) 22.0 (148) 25.3 (133) 20.3 (96) 2.0 (1.1)
 not specified 10.1 (101) 11.1 (70) 8.7 (31) 9.8 (82) 11.9 (19) 12.2 (58) 8.5 (43) 8.3 (26) 10.7 (72) 8.7 (46) 11.6 (55)  
Population of home town
  < 5000 16.5 (165) 16.0 (101) 17.6 (63) 15.4 (129) 22.5 (36) 14.3 (68) 18.7 (95) 16.8 (53) 16.3 (110) 16.0 (84) 17.1 (81) 2.2 (1.2)
 5000 - < 20,000 27.9 (279) 28.0 (177) 27.4 (98) 27.3 (229) 31.3 (50) 28.3 (135) 27.6 (140) 29.2 (92) 27.2 (183) 28.7 (151) 27.0 (128) 2.1 (1.2)
 20,000 - < 100,000 27.2 (272) 26.1 (165) 29.3 (105) 27.6 (232) 25.0 (40) 26.2 (125) 28.0 (142) 26.3 (83) 27.9 (188) 28.3 (149) 25.9 (123) 2.0 (1.1)
 100,000 - < 500,000 14.7 (147) 14.9 (94) 14.5 (52) 14.9 (125) 13.8 (22) 14.0 (67) 15.4 (78) 15.9 (50) 14.1 (95) 12.5 (66) 17.1 (81) 2.2 (1.2)
  > 500,000 13.7 (137) 15.0 (95) 11.2 (40) 14.9 (125) 7.5 (12) 17.2 (82) 10.4 (53) 11.7 (37) 14.4 (97) 14.4 (76 12.9 (61) 1.9 (1.1)
  1. Note. SD = standard deviation, % = percent, n = number