Skip to main content

Table 2 Caregivers’ specific experiences with neuropaediatric services. Questions from the Generic Short Patient Experiences Questionnaire (GS-PEQ)

From: Determinants of caregiver satisfaction with child neurodevelopmental assessment in neuropaediatric clinics

Question Missing (%) Not applicable (%) Applicable (N) Ceiling effect (%) Positive experience (%) Neutral experience (%) Negative experience (%) M SD
Did the clinicians talk to you in a way that was easy to understand? 0.9 1.2 318 84.9 99.1 0.6 0.3 3.83 .44
Do you have confidence in the clinicians’ professional competence? 1.2 1.2 317 82.3 99.4 0.6 0.0 3.82 .40
Do you have confidence in the other staff’s professional skills? 1.5 7.9 294 74.5 98.0 2.0 0.0 3.72 .49
Were you told as much as you considered necessary about how tests or examinations would be carried out? 1.2 0.6 319 68.3 92.2 7.2 0.6 3.60 .67
Did you get sufficient information about your child’s diagnosis/afflictions? 4.5 11.8 271 57.6 86.7 10.0 3.3 3.39 .88
Did you perceive the treatment that you child received as suited to his/her situation? 1.8 8.5 291 64.6 94.5 4.8 0.6 3.58 .63
Were you involved in any decisions regarding your child’s treatment? 4.2 22.1 238 56.7 86.1 8.0 5.9 3.34 .94
Did you perceive the clinic’s work as well organised? 1.8 2.1 312 63.5 92.2 6.9 0.9 3.54 .68
Do you find that the clinic cooperated well with other public services? 3.0 20.9 246 50.4 83.7 13.1 3.2 3.30 .82
Overall, was the help and treatment you received at the clinic satisfactory? 3.3 7.3 290 68.6 97.0 2.7 0.3 3.65 .57
Overall, what benefit have you had from the care at the clinic? * 7.0 8.2 280 38.2 83.9 15.0 1.1 3.20 .77
  1. Note. “Missing” and “not applicable” based on initial N = 330; Ceiling effect (acceptable ceiling effect was defined as a maximum of 50% of respondents choosing the most positive response category), and positive (the two highest item scores), neutral (moderate item scores), and negative experiences (the two lowest item scores) based on N applicable; A five-point response scale was used for 10 items: 0 – not at all, 1 – to a small extent, 2 – to a moderate extent, 3 – to a large extent, 4 – to a very large extent, 5 – not applicable; * A five-point response scale with different answers was used to this question: 0 – no benefit, 1 – a small benefit, 2 – a moderate benefit, 3 – a large benefit, 4 – a very large benefit, 5 – not applicable