Table 2 Caregivers’ specific experiences with neuropaediatric services. Questions from the Generic Short Patient Experiences Questionnaire (GS-PEQ)
Question | Missing (%) | Not applicable (%) | Applicable (N) | Ceiling effect (%) | Positive experience (%) | Neutral experience (%) | Negative experience (%) | M | SD |
|---|---|---|---|---|---|---|---|---|---|
Did the clinicians talk to you in a way that was easy to understand? | 0.9 | 1.2 | 318 | 84.9 | 99.1 | 0.6 | 0.3 | 3.83 | .44 |
Do you have confidence in the clinicians’ professional competence? | 1.2 | 1.2 | 317 | 82.3 | 99.4 | 0.6 | 0.0 | 3.82 | .40 |
Do you have confidence in the other staff’s professional skills? | 1.5 | 7.9 | 294 | 74.5 | 98.0 | 2.0 | 0.0 | 3.72 | .49 |
Were you told as much as you considered necessary about how tests or examinations would be carried out? | 1.2 | 0.6 | 319 | 68.3 | 92.2 | 7.2 | 0.6 | 3.60 | .67 |
Did you get sufficient information about your child’s diagnosis/afflictions? | 4.5 | 11.8 | 271 | 57.6 | 86.7 | 10.0 | 3.3 | 3.39 | .88 |
Did you perceive the treatment that you child received as suited to his/her situation? | 1.8 | 8.5 | 291 | 64.6 | 94.5 | 4.8 | 0.6 | 3.58 | .63 |
Were you involved in any decisions regarding your child’s treatment? | 4.2 | 22.1 | 238 | 56.7 | 86.1 | 8.0 | 5.9 | 3.34 | .94 |
Did you perceive the clinic’s work as well organised? | 1.8 | 2.1 | 312 | 63.5 | 92.2 | 6.9 | 0.9 | 3.54 | .68 |
Do you find that the clinic cooperated well with other public services? | 3.0 | 20.9 | 246 | 50.4 | 83.7 | 13.1 | 3.2 | 3.30 | .82 |
Overall, was the help and treatment you received at the clinic satisfactory? | 3.3 | 7.3 | 290 | 68.6 | 97.0 | 2.7 | 0.3 | 3.65 | .57 |
Overall, what benefit have you had from the care at the clinic? * | 7.0 | 8.2 | 280 | 38.2 | 83.9 | 15.0 | 1.1 | 3.20 | .77 |