Groups | Codes | Summary | Example quotations |
---|---|---|---|
Participants with T1D | Purpose | • To identify similar situations • To identify relationships between parameters, e.g. BG and diet | “Similar situations … I rarely eat ice cream so I can go back and look at how much insulin I took then and how my blood glucose was after” (T1D_P5) “Seeing patterns about what I ate and did in relation to my blood glucose” (T2D_P2). |
Challenge | Lack of support/guidance to interpret data | “The lack of support from the healthcare system”, asking “where is the course where I can learn as a patient? I take more responsibility for my own health when using mHealth tools … [and get] a better overview … But even though I know a lot … I want to know more and I want to do better” (T1D_P1). | |
Specialists | Purpose | For technology to support patients’ self-learning | “Use of technology needs to create patient action … We want these sort of [patient-gathered] data to be self-learning technology” (Specialist1). |
Challenge | Limited capacity | “The number of consultations in our out-patient clinic has increased steadily during the last years. And I remember when I started there almost 20 years ago we had so much more time for patients” (specialist2). | |
Participants with T2D | Purpose | • To understand long-term effects of lifestyle choices on diabetes health • To spend less time worrying about their health and more time living | “[I look for] the results for stress level, drinks and such … to find the causes for high blood glucose” over “days, sometimes a month sometimes three months, between the evaluations” (T2D_P1). “spend less time and energy on self-management” (T2D_P2) |
Challenge | • To understand relationships between parameters, • To trust in technology to function properly, • Cost (in some cases) | “I document blood glucose in the Diabetes Diary app. Plus, I have it on paper too. I don’t trust electronics. I do double” (T2D_P1) “I stopped the electronic way because I was abroad and it cost a lot. But I record manually” (T2D_P2). | |
GPs | Purpose | Not specifically stated | N/A |
Challenge | Inconsistency in and lack of patient-gathered data | “They just test three days before, but then stop testing for half a year, and then come back with three lost test-days. Some are testing every day, four times a day … Some have blood pressure monitor at home, that they show me” (GP3) “I rarely see [paper] diaries with lots of measurements … many of them have Fitbit but I haven’t seen the results from them” (GP2). |