Table 2A – PART 1 of HLQ | ||||||||
Questions (Part 1) | Median | Mean (SD) | Strongly Disagree (%) | Disagree (%) | Agree (%) | Strongly agree (%) | Difficulty Level (%) (CI) | |
Scale 1: Feeling Understood and Supported by Healthcare Providers | ||||||||
1. I have at least one healthcare provider … … . | 2 | 2.39 (0.78) | 12.7 | 41.1 | 40.1 | 6.1 | 53.8 (51.0–56.6) | |
2. I have at least one healthcare provider I can discuss … … | 2 | 2.40 (0.74) | 10.4 | 44.2 | 40.5 | 4.9 | 54.5 (51.7–57.3) | |
3. I have the healthcare providers I need … … . | 2 | 2.46 (0.66) | 6.3 | 44.1 | 46.3 | 3.3 | 50.4 (47.6–53.2) | |
4. I can rely on at least one healthcare provider | 2 | 2.50 (0.73) | 6.4 | 44.9 | 41.1 | 7.5 | 51.4 (48.6–54.2) | |
Average for Scale 1 | 2.44 (0.57) | 52.5 | ||||||
Scale 2: Having Sufficient Information to Manage My Health | ||||||||
1. I feel I have good information … … . | 3 | 2.81 (0.55) | 2.2 | 19.8 | 72.4 | 5.7 | 21.9 (19.7–24.4) | |
2. I have enough information to help me deal … . | 3 | 2.59 (0.58) | 3.3 | 36.0 | 59.0 | 1.7 | 39.3 (36.6–42.1) | |
3. I am sure I have all the information I need to manage … . | 3 | 2.55 (0.59) | 2.9 | 41.2 | 53.9 | 1.9 | 44.2 (41.4–46.9) | |
4. I have all the information I need to look after … . | 3 | 2.52 (0.59) | 3.5 | 42.1 | 53.1 | 1.4 | 45.5 (42.8–48.3) | |
Average for Scale 2 | 2.62 (0.41) | 37.7 | ||||||
Scale 3: Actively Managing My Health | ||||||||
1. I spend quite a lot of time actively … . | 3 | 2.62 (0.63) | 4.7 | 32.1 | 59.8 | 3.4 | 36.8 (34.1–39.5) | |
2. I make plans for what I need to … . | 3 | 2.63 (0.62) | 4.3 | 31.6 | 60.9 | 3.2 | 35.9 (33.3–38.6) | |
3. Despite other things in my life, I make time … .. | 3 | 2.64 (0.60) | 3.6 | 32.0 | 61.5 | 2.9 | 35.6 (32.9–38.3) | |
4. I set my own goals about health … . | 3 | 2.78 (0.60) | 3.5 | 20.9 | 70.0 | 5.6 | 24.4 (22.1–26.9) | |
5. There are things that I do regularly to make … . | 3 | 2.81 (0.52) | 1.8 | 19.9 | 74.1 | 4.1 | 21.7 (19.5–24.1) | |
Average for Scale 3 | 2.69 (0.42) | 30.9 | ||||||
Scale 4: Social Support for Health | ||||||||
1. I can get access to several people who … . | 3 | 2.63 (0.62) | 3.6 | 33.8 | 58.5 | 4.0 | 37.4 (34.8–40.2) | |
2. When I feel ill, the people around me … . | 3 | 2.74 (0.64) | 4.5 | 23.1 | 66.0 | 6.4 | 27.6 (25.2–30.2) | |
3. If I need help, I have plenty of people I … . | 3 | 2.58 (0.66) | 4.7 | 38.2 | 51.9 | 5.2 | 42.9 (40.1–45.6) | |
4. I have at least one person who can … . | 3 | 2.70 (0.67) | 4.4 | 29.2 | 58.8 | 7.6 | 33.5 (30.9–36.2) | |
5. I have strong support from my family … . | 3 | 2.64 (0.66) | 4.4 | 33.0 | 56.5 | 6.2 | 37.3 (34.7–40.1) | |
Average for Scale 4 | 2.66 (0.43) | 35.7 | ||||||
Scale 5: Appraisal of Health Information | ||||||||
1. I compare health information from diff … . | 3 | 2.64 (0.58) | 4.3 | 29.0 | 65.4 | 1.3 | 33.3 (30.7–35.9) | |
2. When I see new information about health, … . | 3 | 2.46 (0.67) | 8.5 | 38.0 | 52.2 | 1.3 | 46.5 (43.7–49.3) | |
3. I always compare health information from different sources | 3 | 2.63 (0.58) | 3.9 | 30.6 | 64.0 | 1.5 | 34.5 (31.9–37.2) | |
4. I know how to find out if the health information I receive … . | 3 | 2.67 (0.59) | 2.8 | 30.3 | 63.2 | 3.6 | 33.1 (30.6–35.8) | |
5. I ask healthcare providers about the quality … . | 2 | 2.45 (0.65) | 6.9 | 43.2 | 48.0 | 1.9 | 50.1 (47.2–52.9) | |
Average for Scale 5 | 2.57 (0.43) | 39.5 | ||||||
Table 2B- PART 2 OF HLQ | ||||||||
Cannot do/always difficult % | Usually difficult% | Sometimes difficult % | Usually Easy % | Always Easy % | DL GH | |||
Scale 6: Ability to Actively Engage with Healthcare Providers | ||||||||
1. Make sure that healthcare providers understand your … | 4 | 3.87 (0.78) | 0.6 | 6.2 | 15.6 | 60.4 | 17.2 | 22.4 (20.1–24.8) |
2. Feel able to discuss your health concerns with … | 4 | 3.30 (0.89) | 2.5 | 18.6 | 28.4 | 47.4 | 3.1 | 49.5 (46.7–52.3) |
3. Have good discussions about your health with doctors | 4 | 3.30 (0.90) | 2.8 | 18.0 | 28.8 | 47.1 | 3.3 | 49.5 (46.8–52.4) |
4. Discuss things with healthcare providers until … . | 4 | 3.28 (0.90) | 3.4 | 18.5 | 26.6 | 49.4 | 2.1 | 48.5 (45.7–51.2) |
5. Ask healthcare providers questions to get the … | 4 | 3.37 (0.86) | 2.3 | 14.7 | 30.1 | 49.0 | 3.8 | 47.2 (44.4–49.9) |
Average for Scale 6 | 3.43 (0.64) | 43.4 | ||||||
Scale 7: Navigating the Healthcare System | ||||||||
1. Find the right healthcare | 4 | 3.30 (0.89) | 2.9 | 17.8 | 27.8 | 49.3 | 2.2 | 48.5 (45.7–51.3) |
2. Get to see the healthcare provider I need to | 4 | 3.39 (0.89) | 1.5 | 18.1 | 25.4 | 49.7 | 5.4 | 44.9 (42.1–47.7) |
3. Decide which healthcare provider you need to see | 3 | 3.18 (0.95) | 4.0 | 23.8 | 23.6 | 46.7 | 1.9 | 51.4 (48.7–54.2) |
4. Make sure you find the right place to get the health … | 4 | 3.53 (0.77) | 1.4 | 10.7 | 23.6 | 61.9 | 2.4 | 35.6 (33.0–38.4) |
5. Find out what healthcare services you are entitled … . | 3 | 3.28 (0.85) | 2.3 | 17.6 | 31.1 | 47.2 | 1.7 | 51.0 (48.7–54.3) |
6. Work out what is the best care for you | 4 | 3.31 (0.86) | 3.2 | 15.5 | 30.1 | 50.0 | 1.2 | 48.8 (45.9–51.5) |
Average for Scale 7 | 3.33 (0.63) | 46.7 | ||||||
Scale 8: Ability to Find Good Health Information | ||||||||
1. Find information about health problems | 4 | 3.50 (0.86) | 1.9 | 11.0 | 30.1 | 49.3 | 7.7 | 43.0 (40.3–45.8) |
2. Find health information from several different places | 4 | 3.62 (0.73) | 1.1 | 7.9 | 22.8 | 64.8 | 3.4 | 31.8 (29.2–34.4) |
3. Get information about health so you are up to date | 4 | 3.42 (0.75) | 1.0 | 10.8 | 35.7 | 50.4 | 2.1 | 47.5 (44.7–50.3) |
4. Get health information in words you … | 4 | 3.84 (0.82) | 2.8 | 3.6 | 15.5 | 63.5 | 14.7 | 21.8 (19.6–24.2) |
5. Get information by yourself | 3 | 2.77 (1.12) | 18.4 | 21.1 | 26.6 | 33.0 | 0.9 | 66.1 (63.4–68.7) |
Average for Scale 8 | 3.36 (0.58) | 42.0 | ||||||
Scale 9: Understanding Health Information Well Enough to Know What to Do | ||||||||
1. Confidently fill in medical forms in the … . | 4 | 3.49 (1.01) | 7.8 | 7.0 | 22.0 | 54.5 | 8.7 | 36.8(34.1–39.5) |
2. Accurately follow the instructions from … . | 4 | 3.89 (0.72) | – | 3.9 | 20.4 | 58.4 | 17.3 | 24.3(21.9–26.8) |
3. Read and understand written health … . | 3 | 2.69 (1.17) | 21.3 | 22.2 | 24.9 | 29.0 | 2.6 | 68.4(65.7–70.9) |
4. Read and understand all the information on … . | 3 | 2.78 (1.21) | 21.6 | 18.1 | 24.5 | 32.0 | 3.7 | 64.3(61.5–66.9) |
5. Understand what health providers … . | 4 | 3.91 (0.73) | 0.2 | 2.2 | 19.0 | 63.8 | 14.91 | 21.3(19.1–23.7) |
Average for Scale 9 | 3.35 (0.60) | 43.02 |