Table 1 Self-reported variables and instruments at inclusion, 6 and 12 months
Variable | Instrument | Items | Scalea |
|---|---|---|---|
Patients’ self-reported outcomes | |||
 Experience of mental health and functioning | Basis-24 [47], The Behavior and Symptom Identification scale | 24 | L-5 |
 Quality of life | ReQoL-10 [57], The Recovering Quality of Life questionnaire | 10 | L-5 |
 Perceived criticism and warmth from relative | PCW [58], Perceived criticism and warmth | 5 | L-10 |
 Experienced shared decision making | CollaboRATE [59] | 3 | L-10 |
 General satisfaction | MANSA [60], the Manchester Short Assessment of Quality of Life – first item | 1 | L-7 |
 Experienced burden of mental health problems | IFIP trial question | 1 | L-7 |
Relatives’ self-reported outcomes | |||
 Experienced support | CWS v2 [48], Carer Well-being and Support questionnaire, short version part B | 18 | L-4 |
 Experience of caregiving | ECI [61], The Experience of Care-giving inventory questionnaire | 66 | L-5 |
 Caregiver quality of life | CarerQoL [62], The Care Related Quality of Life questionnaire | 7 | L-3 |
 Experienced shared decision making | An instrument inspired by CollaboRATE [59] | 3 | L-10 |
 Expressed emotion | FQ [63], The Family questionnaire | 20 | L-4 |