Goal | R2 Priority | R2 Mean | R2 Median | R2 IQR | n | R3 Priority | R3 Mean | R3 Median | R3 IQR | n | W | p |
---|---|---|---|---|---|---|---|---|---|---|---|---|
Achievement of the best possible quality of life for the child** | 1 | 1.92 | 1.00 | 1.00 | 13 | 1 | 1.17 | 1.00 | 0.00 | 12 | −1.34 | 0.18 |
Open & honest communication with the family** | 3 | 4.38 | 4.00 | 2.50 | 13 | 2 | 3.75 | 3.00 | 1.75 | 12 | −1.60 | 0.11 |
Achievement of the child’s full potential within the limits of the illness | 4 | 5.15 | 5.00 | 6.00 | 13 | 3 | 3.90 | 3.50 | 3.00 | 12 | −1.60 | 0.11 |
Optimum symptom management** | 5 | 5.69 | 5.00 | 5.50 | 13 | 4 | 4.00 | 4.00 | 2.00 | 12 | −1.86 | 0.06 |
The child is cared for at home | 2 | 4.15 | 4.00 | 4.0 | 13 | 5 | 4.08 | 3.00 | 3.5 | 12 | 0.00 | 1.00 |
Parents are supported with the provision of care | 7 | 6.54 | 6.00 | 2.50 | 13 | 6 | 6.75 | 7.00 | 2.75 | 12 | −1.34 | 0.18 |
Promotion of normality for the child and family | 6 | 6.08 | 5.00 | 6.00 | 13 | 7 | 6.83 | 6.00 | 3.75 | 12 | −1.07 | 0.29 |
Provision of appropriate respite | 8 | 6.62 | 7.00 | 5.00 | 13 | 8 | 7.25 | 7.50 | 3.50 | 12 | −0.45 | 0.66 |
The family continues to function as a unit and enjoy life | 9 | 6.85 | 5.00 | 5.00 | 13 | 9 | 7.75 | 8.50 | 3.75 | 12 | −2.03 | 0.04 |
Inappropriate medical interventions are minimized | 11 | 8.00 | 8.00 | 4.50 | 13 | 10 | 8.58 | 9.50 | 3.00 | 12 | −1.22 | 0.22 |
Achievement of a seamless web of care | 10 | 7.54 | 7.00 | 2.50 | 13 | 11 | 8.67 | 9.00 | 3.75 | 12 | −1.60 | 0.11 |
The child’s life is prolonged** | 12 | 11.54 | 12.00 | 1.00 | 13 | 12 | 11.50 | 12.00 | 0.75 | 12 | 0.00 | 1.00 |
The family is provided with the hope that things will get better** | 13 | 11.69 | 13.00 | 1.00 | 13 | 13 | 11.83 | 13.00 | 1.00 | 12 | −1.34 | 0.18 |