Assessing and reporting patient participation by means of patient preferences and experiences

Table 1 Patient profile for preference-based patient participation for patient 18 and patient 66. Response options for patient preferences (P): 1 = unimportant, 2 = somewhat important, 3 = very important, and 4 = crucial (for patient participation), and for patient experiences of patient participation (E): 1 = not at all, 2 = to some extent, 3 = to a large extent, and 4 = entirely. Levels of match between preferences and experiences: insufficient = X, fair =!, and sufficient = √

Items	Patient 18					Patient 66
	Response option				Level	Response option				Level
	1	2	3	4	Level	1	2	3	4	Level
1. Being listened to			E	P	!		P	E		√
2. Experiences being recognised		E		P	X		P	E		√
3. Reciprocal communication			PE		√		P	E		√
4. Sharing one’s symptoms			E	P	!		P	E		√
5. Explanations as to symptoms		E		P	X		P	E		√
6. Being told what is done		E	P		!		P	E		√
7. Learning of plans			E	P	!			E	P	!
8. Taking part in planning		E		P	X		P	E		√
9. Phrasing personal goals		E	P		!		P	E		√
10. Learning to manage symptoms		E		P	X		P	E		√
11. Managing treatment			E	P	!			PE		√
12. Managing self-care			E	P	!		P	E		√

ISSN: 1472-6963