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Table 1 Patient profile for preference-based patient participation for patient 18 and patient 66. Response options for patient preferences (P): 1 = unimportant, 2 = somewhat important, 3 = very important, and 4 = crucial (for patient participation), and for patient experiences of patient participation (E): 1 = not at all, 2 = to some extent, 3 = to a large extent, and 4 = entirely. Levels of match between preferences and experiences: insufficient = X, fair =!, and sufficient = 

From: Assessing and reporting patient participation by means of patient preferences and experiences

Items Patient 18 Patient 66
Response option Level Response option Level
1 2 3 4 1 2 3 4
1. Being listened to    E P !   P E  
2. Experiences being recognised   E   P X   P E  
3. Reciprocal communication    PE     P E  
4. Sharing one’s symptoms    E P !   P E  
5. Explanations as to symptoms   E   P X   P E  
6. Being told what is done   E P   !   P E  
7. Learning of plans    E P !    E P !
8. Taking part in planning   E   P X   P E  
9. Phrasing personal goals   E P   !   P E  
10. Learning to manage symptoms   E   P X   P E  
11. Managing treatment    E P !    PE  
12. Managing self-care    E P !   P E