Table 3 Topics addressed and type of questions per round

Participant characteristics

6 open ended questions (such as age, gender, frequency of contact with people with DS).

Idem: same questions were presented to participants who had not participated in round 1.

Purpose of QI-set (e.g. transparency, quality improvement, auditing, insurance)

9 purposes, rate importance

12 propositions^a

9 propositions^a

Quality domains to be included in QI-set (e.g. coordinated care, person-centeredness, clinical outcome)

10 items^b and 1 proposition for children with DS; 10 items^b and 1 proposition for adults with DS

7 items^b for children and adults with DS

28 items^b (sub-domains)

1 proposition^a

Healthcare disciplines to be included in QI-set (e.g. Down team, psychological care, physiotherapy)

14 items^b and 1 close-ended question for children with DS; 14 items^b and 1 close-ended question for adults with DS

6 propositions;

30 items^b for children;

30 items^b for adults with DS

4 open-ended questions

1 proposition^a

Number and type (structure / process / outcome) of QIs

2 close-ended questions

2 propositions;

1 close-ended question

2 propositions;

3 open-ended questions

Information sources and transparency of QIs and practical issues regarding development

1 close-ended question;

1 open-ended question

1 proposition;

1 close-ended question;

6 open-ended questions

6 propositions;

1 close-ended question;

2 open-ended question

17 propositions

Healthcare quality for people with DS and current use of QIs

3 close-ended questions;

3 open-ended questions

15 propositions

Aim of the study

1 open-ended question