Table 2 Burden on Caregivers as measured by the ZBI
From: The effects of inflammatory bowel disease on caregivers: significant burden and loss of productivity
Zarit Burden Interview Results Among Caregivers | ||||||
|---|---|---|---|---|---|---|
Question | Never | Rarely | Sometimes | Quite Frequently | Frequently | Nearly Always |
1. Do you feel that your care recipient asks for more help than he/she needs? | 65% | 24% | 10% | 2% | 0% | 0% |
2. Do you feel that because of the time you spend with your care recipient that you don’t have enough time for yourself? | 51% | 17% | 26% | 3% | 0% | 3% |
3. Do you feel stressed between caring for your care recipient and trying to meet other responsibilities for your family or work? | 30% | 28% | 30% | 6% | 0% | 5% |
4. Do you feel embarrassed over your care recipient behavior? | 73% | 16% | 12% | 0% | 0% | 0% |
5. Do you feel angry when you are around your care recipient? | 68% | 23% | 9% | 0% | 0% | 1% |
6. Do you feel that your care recipient currently affects your relationships with other family members or friends in a negative way? | 62% | 22% | 14% | 2% | 0% | 1% |
7. Are you afraid what the future holds for your care recipient? | 14% | 14% | 40% | 22% | 1% | 10% |
8. Do you feel your care recipient is dependent on you? | 15% | 30% | 37% | 13% | 1% | 4% |
9. Do you feel strained when you are around your care recipient? | 51% | 25% | 23% | 1% | 0% | 1% |
10. Do you feel your health has suffered because of your involvement with your care recipient? | 67% | 16% | 14% | 4% | 0% | 0% |
11. Do you feel that you don’t have as much privacy as you would like because of your care recipient? | 73% | 16% | 7% | 3% | 0% | 2% |
12. Do you feel that your social life has suffered because you are caring for your care recipient? | 50% | 24% | 22% | 3% | 0% | 2% |
13. Do you feel uncomfortable about having friends over because of your care recipient? | 81% | 9% | 9% | 0% | 0% | 1% |
14. Do you feel that your care recipient seems to expect you to take care of him/her as if you were the only one he/she could depend on? | 54% | 20% | 16% | 6% | 0% | 5% |
15. Do you feel that you don’t have enough money to take care of your care recipient in addition to the rest of your expenses? | 51% | 17% | 24% | 5% | 1% | 3% |
16. Do you feel that you will be unable to take care of your care recipient much longer? | 80% | 12% | 6% | 2% | 0% | 0% |
17. Do you feel you have lost control of your life since your care recipient’s illness? | 71% | 11% | 16% | 3% | 0% | 0% |
18. Do you wish you could leave the care of your care recipient to someone else? | 75% | 14% | 9% | 1% | 0% | 1% |
19. Do you feel uncertain about what to do about your care recipient? | 37% | 30% | 25% | 6% | 0% | 1% |
20. Do you feel you should be doing more for your care recipient? | 25% | 25% | 35% | 13% | 0% | 3% |
21. Do you feel you could do a better job in caring for your care recipient? | 22% | 27% | 38% | 11% | 0% | 2% |
22. Overall, how burdened do you feel in caring for your care recipient? | 46% | 35% | 11% | 7% | 0% | 1% |