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Table 1 The characteristics of IBD patients and Caregivers

From: The effects of inflammatory bowel disease on caregivers: significant burden and loss of productivity

VariableCD (n = 53)UC (n = 49)Caregivers (n = 102)
Age, mean (SD)37.7 (17.1)40.9 (15)48 (15.5)
Gender % (n)69.8% Female (37)69.4% Female (34)48% Female (49)
Race % (n)
 White Non-Hispanic67.9% (36)71.4% (35)58.8% (60)
 White Hispanic11.3% (6)12.2% (6)13.7% (14)
 Other5.6% (3)8.2% (4)11.8% (12)
 Black/African American5.6% (3)0% (0)3.9% (4)
 Asian7.5% (4)8.2% (4)11.7% (12)
 American Indian/Alaska Native1.9% (1)0% (0)0% (0)
Abdominal Surgery % (n)52.8% Yes (28)12.2% Yes (6)N/A
Fistula % (n)41.5% Yes (22)16.3% Yes (8)N/A
Medication Use % (n)  N/A
 Biologics16% (16)6% (6) 
 5ASA2% (2)11% (11) 
 Immunomodulators5% (5)1% (1) 
 Steroids2% (2)4% (4) 
 Others (Antibiotic, Antispasmodic, Anti-diarrheal)0% (0)2% (2) 
 Combo11% (11)15% (15) 
 No IBD Related Medication18% (18)7% (7) 
Disease State (mHI) % (n)58.5% Active Disease (31)38.8% Active Disease (19)N/A
Disease Location26.4% (14) Small Bowel2.0% (1) Proctitis 
17.0% (9) Large Bowel69.4% (34) Pancolitis 
37.7% (20) Both12.2% (6) Left-sided 
18.9% (10) Unknown16.3% (8) Unknown 
Disease Duration in years, mean (SD)14.2 (9.8)16.8 (18.6)N/A
Quality of Life, mean (SD)44.4 (12.2)47.3 (13.1)N/A
Employed % (n)43.4% Yes (23)59.2% Yes (29)71.6% Yes (73)
Of those employed:Due to IBDDue to IBDDue to IBD caregiving
Absenteeism (Yes/No) last week % (n)52.2% Yes (12)27.6% Yes (8)38.4% Yes (28)
If yes, mean absenteeism hours %15%7.1%9.1%
Of those employed:Due to IBDDue to IBDDue to IBD caregiving
Presenteeism (Likert) % (n)78.3% Yes (18)58.6% Yes (17)57.5% Yes (42)
Mean Presenteeism %30.6%27.3%21.5%
For the entire group:Due to IBDDue to IBDDue to IBD caregiving
Activity Impairment (Likert) % (n)84.9% Yes (45)71.4% Yes (35)52% Yes (53)
Mean Activity Impairment %38.9%36.3%18.7%
Relationship to Patient % (n)N/AN/A55.9% Spouse or Partner (57)
23.5% Parent/Family member (24)
13.7% Child (14)
6.9% Other (7)
Environment % (n)N/AN/A74.5% Living with Patient (76)
25.5% Living separately of Patient (26)
Education Level % (n)N/AN/A77.5% College or Post-College Degree (79)
22.5% College-degree or less (23)
Annual Income level % (n)N/AN/A47.1% $100,000 or more (48)
52.9% Less than $100,000 (54)
Mean Time Spent Caregiving
(hours/week SD)
N/AN/A12.2 h (25.4 h)
Mean Duration of Caregiving (SD)N/AN/A8.1 years (8.5)
Chronic Disease % (n)N/AN/A13.7% Yes (14)