Table 1 Outcome measurements according to time points of collection

T1 (baseline)^a

Demographic data

SLAQ [29]; EQ-5D-5L [30]; LupusQoL [31]; SDM-Q-9^c [32]

Demographic data; professional profile;

Adherence to recommendations;

LatConII^d [34, 35]; Knowledge test^d

T2 (9 mo)^b

SLAQ [29];

Health care utilization and productivity losses

T3 (18 mo)^b

SLAQ [29]; EQ-5D-5L [30]; LupusQoL [31];

Health care utilization and productivity losses

Adherence to recommendations;

LatConII [34, 35]; Knowledge test