Table 1 Key Survey Measures and Data Collection Timeline

Demographics

Age, highest level of education, total household income, race/ethnicity, current relationship status, sexual orientation, gender identity, and religious identity will be collected at baseline

X

AET medication Adherence (adapted from MAQ) and MARS-1

Self-reported medication adherence will be measured via a modified version of the Medication Adherence Questionnaire (MAQ) [64] and the Medication Adherence Rating Scale 1-item (MARS-1) [65]

X

X

Symptom burden (FACT-ES)

The Functional Assessment of Cancer Therapy Endocrine Symptoms (FACT-ES), a 18-item instrument evaluates endocrine symptoms on a five-point Likert scale [57]

X

X

X

Quality of life (SF-12)

The Short-Form Health Survey (SF-12), a 12-item instrument that provides summary measures of physical and mental health status will be used [66, 67]

X

X

X

Communication: Patient and Physician Peer Assessment Module; Adapted 1-item measure

The Patient and Physician Peer Assessment Module [62] is an 11-item instrument that assesses patient perceptions of communication with their provider on scale of 1 (poor) to 5 (excellent). Shared decision making will also be assessed using a 1-item question adopted from Wheeler et al. [63]

X

X

X

Self-efficacy for managing symptoms (PROMIS)

The 4-item PROMIS Item Bank v1.0 – Self-Efficacy for Managing Symptoms short form scale will be used to measure confidence in a participant’s ability to successfully perform specific tasks or behaviors related to her health in a variety of situations [61]

X

X

X

Healthcare utilization in previous 6-months

A measure developed for this study based on the National Health Institutes Survey (NHIS) [68] will be used to assess healthcare utilization throughout the duration of the study.

X

X

X