TY - STD TI - Eurostat, data from 2011 available on: https://ec.europa.eu/eurostat/statistics-explained/index.php/Disability_statistics. UR - https://ec.europa.eu/eurostat/statistics-explained/index.php/Disability_statistics ID - ref1 ER - TY - STD TI - (ESG) ESG on SH. Acting together: a roadmap for sustainable healthcare, white paper, Abbvie pharmaceuticals. ID - ref2 ER - TY - BOOK AU - Gemmill, M. PY - 2008 DA - 2008// TI - Research note: chronic disease Management in Europe. The London School of Economics and Political Science ID - Gemmill2008 ER - TY - STD TI - Enabling cares to care. Proposal for an EU-level strategy in support of informal care provision. Eurocarers. 2013:2013. ID - ref4 ER - TY - JOUR AU - Grassel, E. AU - Adabbo, R. PY - 2011 DA - 2011// TI - Perceived burden of informal caregivers of a chronically ill older family member burden in the context of the transactional stress model of Lazarus and Folkman. GeroPsych (2011), 24, pp 143-154 [internet] JO - Available from: GeroPsych VL - 24 ID - Grassel2011 ER - TY - JOUR AU - Donelan, K. PY - 2002 DA - 2002// TI - Challenged to care: informal caregivers in a changing health system JO - Health Aff VL - 21 UR - https://doi.org/10.1377/hlthaff.21.4.222 DO - 10.1377/hlthaff.21.4.222 ID - Donelan2002 ER - TY - JOUR AU - Brinkmeyer, M. Y. PY - 2004 DA - 2004// TI - Family engagement, consumer satisfaction and treatment outcome in the new era of child and adolescent in-patient psychiatric care JO - Clin Child Psychol Psychiatry VL - 9 UR - https://doi.org/10.1177/1359104504046159 DO - 10.1177/1359104504046159 ID - Brinkmeyer2004 ER - TY - STD TI - Commission E. The indirect cost of long-term care research note 8/2013. ID - ref8 ER - TY - STD TI - Indagine CENSIS 2010. ID - ref9 ER - TY - JOUR AU - Shulz, R. PY - 2001 DA - 2001// TI - Involvement in caregiving and adjustment to death of a spouse: findings from the caregiver health effects study JO - J Am Med Assoc VL - 285 UR - https://doi.org/10.1001/jama.285.24.3123 DO - 10.1001/jama.285.24.3123 ID - Shulz2001 ER - TY - JOUR AU - Ettner, S. PY - 1996 DA - 1996// TI - The opportunity costs of elder care JO - J Hum Resour VL - 31 UR - https://doi.org/10.2307/146047 DO - 10.2307/146047 ID - Ettner1996 ER - TY - STD TI - Rose-Rego SK, Strauss ME, Smyth K. Differences in the perceived well-being of wives and husbands caring for persons with Alzheimer’s disease. Gerontologist. 1998. ID - ref12 ER - TY - JOUR AU - Bernabeo, E. PY - 2013 DA - 2013// TI - Patients, providers, and systems need to acquire a specific set of competencies to achieve truly patient-centered care JO - Health Aff VL - 32 UR - https://doi.org/10.1377/hlthaff.2012.1120 DO - 10.1377/hlthaff.2012.1120 ID - Bernabeo2013 ER - TY - JOUR AU - Carman, K. L. PY - 2013 DA - 2013// TI - Patient and family engagement: a framework for understanding the elements and developing interventions and policies JO - Health Aff VL - 32 UR - https://doi.org/10.1377/hlthaff.2012.1133 DO - 10.1377/hlthaff.2012.1133 ID - Carman2013 ER - TY - STD TI - Behrndt E-M, Straubmeier M, Seidl H, Vetter C, Luttenberger K, Graessel E. Brief telephone counselling is effective for caregivers who do not experience any major life events – caregiver-related outcomes of the German day-care study. BMC Health Serv Res [Internet]. BioMed Central; 2019 9 [cited 2019 Feb 26];19(1):20. Available from: https://bmchealthservres.biomedcentral.com/articles/10.1186/s12913-018-3853-8 UR - https://bmchealthservres.biomedcentral.com/articles/10.1186/s12913-018-3853-8 ID - ref15 ER - TY - JOUR AU - Chee, Y. K. AU - Gitlin, L. N. AU - Dennis, M. P. AU - Hauck, W. W. PY - 2007 DA - 2007// TI - Predictors of Adherence to a Skill-Building Intervention in Dementia Caregivers JO - The Journals of Gerontology Series A: Biological Sciences and Medical Sciences VL - 62 UR - https://doi.org/10.1093/gerona/62.6.673 DO - 10.1093/gerona/62.6.673 ID - Chee2007 ER - TY - JOUR AU - Burke, R. E. PY - 2016 DA - 2016// TI - Can we engage caregiver spouses of patients with heart failure with a low-intensity, symptom-guided intervention? JO - Hear Lung J Acute Crit Care VL - 45 UR - https://doi.org/10.1016/j.hrtlng.2015.12.006 DO - 10.1016/j.hrtlng.2015.12.006 ID - Burke2016 ER - TY - JOUR AU - Chien, L. PY - 2011 DA - 2011// TI - Caregiver support groups in patients with dementia: a meta-analysis JO - Int J Geriatr Psychiatry VL - 26 UR - https://doi.org/10.1002/gps.2660 DO - 10.1002/gps.2660 ID - Chien2011 ER - TY - JOUR PY - 2005 DA - 2005// TI - The caregiver burden inventory in evaluating the burden of caregivers of elderly demented patients: results from a multicenter study JO - Aging Clin Exp Res VL - 17 UR - https://doi.org/10.1007/BF03337720 DO - 10.1007/BF03337720 ID - ref19 ER - TY - JOUR AU - Stevenson, J. PY - 1990 DA - 1990// TI - Family stress related to home care of Alzheimer’s disease patients and implications for support JO - J Neurosci Nurs VL - 22 UR - https://doi.org/10.1097/01376517-199006000-00009 DO - 10.1097/01376517-199006000-00009 ID - Stevenson1990 ER - TY - JOUR AU - Nijboer, C. AU - Triemstra, M. AU - Tempelaar, R. PY - 1999 DA - 1999// TI - Determinants of caregiving experiences and mental health of partners of cancer patients JO - Cancer. VL - 86 UR - https://doi.org/3.0.CO;2-S DO - 3.0.CO;2-S ID - Nijboer1999 ER - TY - STD TI - Barello S, Castiglioni C, Bonanomi A, Graffigna G. THE CAREGIVING HEALTH ENGAGEMENT SCALE (CHE-s): Development and Initial Validation of a New Tool for Measuring Family Caregiver Engagement in Healthcare. Submitted to BMC Public Health. ID - ref22 ER - TY - JOUR AU - MISHEL, M. E. R. L. E. H. PY - 1981 DA - 1981// TI - The Measurement of Uncertainty in Illness JO - Nursing Research VL - 30 UR - https://doi.org/10.1097/00006199-198109000-00002 DO - 10.1097/00006199-198109000-00002 ID - MISHEL1981 ER - TY - STD TI - Gremigni, P.; Sommaruga, M.; Peltenburg M. Validation of the health care communication questionnaire (HCCQ) to measure outpatients’ experiencel of communication with hospita staff. Numero 1, Pagine 57-64, copyright © 2007 Elsevier Ireland ltd. Patient Educ Couns Fascicolo. ID - ref24 ER - TY - JOUR AU - Chew, L. D. AU - Griffin, J. M. AU - Partin, M. R. AU - Noorbaloochi, S. AU - Grill, J. P. AU - Snyder, A. AU - Bradley, K. A. AU - Nugent, S. M. AU - Baines, A. D. AU - Vanryn, M. PY - 2008 DA - 2008// TI - Validation of screening questions for limited health literacy in a large VA outpatient population JO - J Gen Intern Med VL - 23 UR - https://doi.org/10.1007/s11606-008-0520-5 DO - 10.1007/s11606-008-0520-5 ID - Chew2008 ER - TY - STD TI - Steffen AM, McKibbin C, Zeiss AM, Gallagher-Thompson D, Bandura A. The revised scale for caregiving self-efficacy: reliability and validity studies. J Gerontol B Psychol Sci Soc Sci. 57(1):P74. ID - ref26 ER - TY - JOUR AU - Lilly, M. e. r. e. d. i. t. h. B. AU - Robinson, C. a. r. o. l. e. A. AU - Holtzman, S. u. s. a. n. AU - Bottorff, J. o. a. n. L. PY - 2011 DA - 2011// TI - Can we move beyond burden and burnout to support the health and wellness of family caregivers to persons with dementia? Evidence from British Columbia, Canada JO - Health & Social Care in the Community VL - 20 UR - https://doi.org/10.1111/j.1365-2524.2011.01025.x DO - 10.1111/j.1365-2524.2011.01025.x ID - Lilly2011 ER - TY - BOOK AU - Ronald, D. AU - Adelman, M. D. AU - Lyubov, L. AU - Tmanova, D. V. M. AU - MLIS, M. S. AU - Diana Delgado, M. L. S. PY - 2014 DA - 2014// TI - Sarah Dion, BA;Mark S. Lachs PB - Caregiver Burden CY - A Clinical Review ID - Ronald2014 ER -