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Table 2 Characteristics of the 24 person-centred care items (n = 289)

From: Validation of an instrument to assess informal caregivers’ perceptions about the delivery of patient-centred care to people with intellectual disabilities in residential settings

 

Item

Valid n

Missing

Mean

SD

λ

Patients’ preferences

 1.

Healthcare professionals treat clients with dignity and respect

285

4 (1%)

4.56

0.69

0.820

 2.

Healthcare is focused on improving the quality of life of clients

286

4 (1%)

4.30

0.77

0.882

 3.

Healthcare professionals take clients’ preferences into account

286

4 (1%)

4.08

0.83

0.885

Physical comfort

 6.

Healthcare professionals pay attention to pain management

271

18 (6%)

3.93

1.07

0.733

 7.

Healthcare professionals take clients’ preferences for support with their daily living needs into account

280

9 (3%)

4.05

1.00

0.740

 9.

Clients have privacy

281

8 (3%)

3.78

1.04

0.575

Coordination of care

10.

Healthcare professionals are well informed; clients need to tell their story only once

264

25 (9%)

3.50

1.10

0.797

11.

Care is well coordinated among professionals

282

7 (2%)

3.76

0.93

0.785

14.

Healthcare professionals work as a team in care delivery to clients

282

7 (2%)

4.20

0.90

0.661

Emotional support

15.

Healthcare professionals pay attention to clients’ anxiety about their situations

270

19 (7%)

4.02

1.02

0.903

16.

Healthcare professionals involve relatives in the emotional support of clients

274

15 (5%)

4.01

1.06

0.836

17.

Healthcare professionals pay attention to clients’ anxiety over the impact of their illness on their loved ones (if applicable)

246

43 (15%)

3.68

1.21

0.851

Access to care

18.

The building is accessible to all clients

279

10 (3%)

4.43

0.98

0.537

19.

Clear directions are provided to and inside the building

266

23 (8%)

4.28

1.00

0.595

 20.

It is easy to schedule an appointment

284

5 (2%)

4.30

0.92

0.825

Continuity and transition

23.

When a client is transferred to another ward, relevant patient information is transferred as well

264

25 (9%)

4.06

1.17

0.759

24.

Clients who are transferred are well informed about where they are going, what care they will receive, and who will be their contact person

262

27 (9%)

3.89

0.67

0.918

25.

Clients get skilled advice about care and support at home after discharge

222

67 (23%)

3.87

1.27

0.976

Information and education

27.

Clients can access their care records

227

62 (21%)

2.47

1.66

0.701

28.

Clients are in charge of their own care

237

52 (18%)

2.59

1.42

0.953

29.

Healthcare professionals support clients to be in charge of their care

253

36 (12%)

3.19

1.33

0.923

Family and friends

33.

Healthcare professionals involve relatives in decisions regarding patients’ care

281

8 (3%)

4.38

0.93

0.786

34.

Healthcare professionals pay attention to loved ones in their role as carers for clients

279

10 (3%)

4.01

1.00

0.870

35.

Healthcare professionals pay attention to the needs of clients’ family and friends

280

9 (3%)

3.79

1.09

0.857