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Table 2 EPOCK project data collection: Study population, sample size, data collection tools, indicators collected, France

From: EPOCK study protocol: a mixed-methods research program evaluating cancer care coordination nursing occupations in France as a complex intervention

Study population

Sample size

Data collection tool

Analysis results and Indicators collected

Qualitative study (18 months)

 Target cancer coordination nurses

10 nurses observations (3 days per nurse, per centre)

Structured on-site observations: quiet observation of daily work, during 3 days with an Ad hoc observation guide

Relevant components of reference operational framework of cancer care coordination interventions for the French health care system:

- Structure of the coordination intervention (organisational rules, human, financial, material, perceived resources, representations, beliefs)

- Actors of coordination (role, competences …)

- Process of care coordination and propositions of results

- Environment, contexts of coordination

 Target cancer coordination nurses

1 (1 day for the 10 nurses)

“Mono-professionals” target nurses focus group

 A cancer coordination nurse, a medical oncologist, a general practitioner, a home nurse, a patient and his caregiver

1 (1 day in 1 centre)

“Multi-stakeholders” focus group

 Cancer coordination nurses

38 (target cancer coordination nurses [n = 10] and all the others selected by the investigation centres [n = 28])

All providers’ semi-structured interviews

 Referral professionals to cancer coordination nurses

200 (20 professionals selected by the 10 target cancer coordination nurses)

 

 Patients

50 (5 patients selected by the 10 target cancer coordination nurses)

 

 Patients’ caregivers

50 (1 caregiver per patient)

 

Quantitative analysis ad hoc survey (18 months)

 All cancer coordination nurses

38 (target and non-target cancer coordination nurses)

Self-administered questionnaires

Socio-demographic data, perceptions of organisational conditions

  

Eisenberger Survey of Perceived Organizational Support (SPOS) score

Perception that organisation contributes to their work well-being by an adequate organisational support

  

Rizzo’s questionnaire

Role perceptions (measures of role conflict and ambiguity)

  

The workplace commitment Allen and Meyer’s scale

Measures of affective commitment, normative commitment,

and continuance commitment

Referral professionals to cancer coordination nurses

380 (10 professionals per cancer coordination nurses)

Ad hoc self-administrated questionnaire

Satisfaction with coordination of care

Patients

190 (5 patients per cancer coordination nurses)

Ad hoc self-administrated questionnaire

Satisfaction with coordination of care

  

EPICES Social precariousness score

Measure of deprivation

  

Quality of Life Questionnaire – Core 30

Score of overall health status and quality of life; score reflecting levels of function domains and levels of symptom burden

Patients‘caregivers

190 (1 caregiver per patient)

Ad hoc self-administrated questionnaire

Satisfaction with coordination of care

  

Zarit burden inventory

Measure subjective caregiver burden (estimating the total hours per week spent doing things for patients and how many hours caregivers missed paid work in the prior month due to caregiving responsibilities)