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Table 1 Sociodemographic data and number of participants in the different study groups

From: Self-efficacy and self-management strategies in acute intermittent porphyria

Participant characteristics All (n = 140) P a Symptomatic   Asymptomatic   Unclassified (n = 6)
Received GC (n = 34) No GC (n = 72) p Received GC (n = 14) No GC (n = 14) p
Women (%) 58 0.02 68 64 0.70 21 43 0.23 50
Age, mean (range) in years 52 (18–89) 0.03 51 (20–73) 56 (18–89) 0.10 42 (28–58) 47 (23–82) 0.03 52 (22–66)
Children (%) 79 0.47 79 82 0.76 79 71 0.66 67
Cohabiting status (%)b   0.36    0.16    0.80  
 Living alone 21   17 25   14 14   33
 Cohabitant 77   79 75   86 79   67
Highest level of education (%) 0.55    < 0.01    0.20  
 Secondary school    3 33   7 29   33
 High school    56 39   36 43   33
 College/university    41 28   57 29   33
Occupational status (%)   0.04    0.02    0.39  
 Employedc 62   79 47   93 79   33
 Pensioner 19   3 31   0 7   33
 Disabled 16   18 18   7 14   0
 Other 3   0 4   0 0   33
  1. a Difference between the self-assessed symptomatic (n = 106) and asymptomatic HMBS mutation carriers (n = 28) with categorical variables analysed by χ2 test for independence, and for age by one-way analysis of variance (ANOVA)
  2. b Data not reported by two persons, one in the symptomatic and one in the asymptomatic group
  3. c Includes homeworkers and students
  4. Differences were assessed between the symptomatic and asymptomatic group and between the subgroups of those who had reported receiving genetic counseling (GC) or not