Exploring the views of being a proxy from the perspective of unpaid carers and paid carers: developing a proxy version of the Adult Social Care Outcomes Toolkit (ASCOT)

Table 1 ASCOT domains and definitions

Control over daily life	The respondent is able to choose what to do and when to do it, having control over daily life and activities.
Personal cleanliness and comfort	The respondent feels personally clean and comfortable and looks presentable. At best, is dressed and groomed in a way that reflects personal preferences.
Food and drink	The respondent feels that s/he has a nutritious, varied and culturally appropriate diet with enough food and drink, at regular and timely intervals, that he/she enjoys.
Personal safety	The respondent feels safe and secure. This means being free from fear of abuse, falling or other physical harm and fear of being attacked or robbed.
Social participation and involvement	The respondent feels content with his/her social situation, where social situation is taken to mean the sustenance of meaningful relationships with friends and family, and feeling involved or part of a community, should this be important to the service user.
Occupation	The respondent is sufficiently occupied in a range of meaningful activities whether it be formal employment, unpaid work, caring for others or leisure activities.
Accomodation cleanliness and comfort	The respondent feels that the home environment, including all rooms, is clean and comfortable.
Dignity	The psychological impact of the way support and care services are provided on the service user’s personal sense of significance and sense-of-self.

ISSN: 1472-6963