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Table 3 Second round - selecting of the 20 needs aspects (n = 58)

From: Neurocognitive disorders: what are the prioritized caregiver needs? A consensus obtained by the Delphi method

Aspect of needs

DIMa

Selection

Percent

Weight

Rank

Number of experts

Coping with behavioral disorders

SKI-C

48

83

307

1

Coping with behavioral crisis

SKI-C

41

71

280

2

Information on the neurocognitive disease and its progression

INF-P

37

64

240

3

Information on behavioral disorders

INF-P

38

66

219

4

Providing emotional and affective support to PWNCD

SKI-C

35

60

214

5

Communication between caregivers and PWNCD

SKI-C

28

48

177

6

Coping with cognitive disorders

SKI-C

28

48

175

7

The research (disease and therapies)

INF-P

37

64

170

8

Coping with the relationship evolution between caregivers and PWNCD

SKI-C

30

52

152

9

Information on the drugs for the neurocognitive disease (efficacy, tolerance and utilization)

INF-P

29

50

147

10

Information on cognitive disorders

INF-P

23

40

146

Stimulating/appropriates activities for PWNCD at home

SKI-C

25

43

133

Management of the PWNCD pain

SKI-C

21

36

128

 

Roles of the health professionals involved in the PWNCD care pathway

INF-P

22

38

111

Finding available services closer to home

SKI-S

28

48

100

Undertaking the steps for the services utilization

SKI-S

26

45

100

Financial issues for the ADL

INF-S

23

40

94

The diagnostic process of the neurocognitive disease

INF-P

18

31

92

Basic care to PWNCD

SKI-C

15

26

85

Information on the PWNCD drugs for comorbidities (efficacy, tolerance and utilization)

INF-P

11

19

41

  1. ADL activities of the daily living, PWNCD people with a neurocognitve dirsorder
  2. aDimension of need. INF-P information needs about patient (people with NCD); INF-S information needs about services, SKI-C coping skills needs, SKI-S skills needs about services