Registry | Start | Purpose | Target population | Coverage |
---|---|---|---|---|
Infectious Disease Registry HIV | 2003 | To create good, equitable care regardless of method of infection, gender and care provider by identifying problems and improvement potential. | All HIV-infected patients receiving care in Sweden (more than 6200 patients registered). | Used by all HIV clinics and thereby covering more than 99% of the targeted population. |
National Prostate Cancer Registry of Sweden | 1996 | To monitor time trends and geographical differences with regard to investigation, diagnosis, tumour characteristics and treatment. | All cases of prostate cancer. More than 10,000 patients are registered. | Estimated coverage is 98% of the target population. |
Senior alert | 2008 | To support the preventative care process to prevent falls, pressure ulcers, malnutrition and oral health among the elderly. | All persons 65 years of age or older with any form of contact with health and social care. | Estimated coverage is 55–60% of the target population. |
Swedish Follow-up Programme for Cerebral Palsy | 2005 | To monitor the results of continuous treatment interventions from infancy to adulthood. | People with cerebral palsy in Sweden. | Estimated coverage is 95% of the target population. |
Swedish Hernia Registry | 1992 | To survey the development of hernia surgery in Sweden in terms of methods of repair, waiting times, and results in terms of re-operation or infection. | All adults from 15 years or older with diagnosed inguinal or femoral hernia. | Estimated coverage is 98% of the target population. |
Swedish National Forensic Psychiatric Registry | 2008 | To provide data for improvements and clinical research in order to give the patients safe and reliable care. | All patients handed over by the courts to forensic psychiatric care. | Estimated coverage is 97% of the target population. |
Swedish National Registry of Gynecological Surgery | 1997 | To provide clinics with data for quality assurance, to monitor improvement measures over time, and to conduct research on collected data. The registry also aims to assist the clinics’ documentation procedures and the communication between treating physicians and patients. | All major gynecological procedures. | Coverage is 74–92% depending on type of surgery. |
Swedish Palliative Care Registry | 2005 | To continuously improve end of life care independent of the diagnosis and institution providing the care. | When there is no cure, treatment turns into palliative care which includes support to the family. | More than 60% of all deaths are recorded in the registry. |
Swedish Registry of Congenital Heart Disease | 1998 | To follow patients with congenital heart disease from childhood through adulthood, to obtain as complete information as possible about their natural life course and treatment outcomes. | Around 1000 children yearly are born with a congenital heart disease. More than 40,000 adults in Sweden live with this disease. | Coverage 90% |