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Table 1 Summary of Phase 1 Semi-Structured Interview Questions

From: Adaptation of Coping Together - a self-directed coping skills intervention for patients and caregivers in an outpatient hematopoietic stem cell transplantation setting: a study protocol

Participants

Interview Questions

HSCT Patients or CGs

• Could you please tell me what it has been like during the first 100 days after HSCT?

• How did you use the booklets during the first 100 days after HSCT?

• Approximately how much of each booklet (percent or number of pages) would you estimate that you reviewed? If you didn’t review the booklets, could you please tell me the reason(s)?

• What was helpful/least helpful?

• How did you find using these booklets on your own? Would it have been better to use them together?

• What did you think about the

• Layout?

• Appearance?

• Information?

• What would you keep/remove?

• What other recommendations would you make?

HSCT Dyads

• Could you please tell me about your experiences as a couple within the first 100 days post-HSCT?

• Can you describe how you cope with difficult situations as a couple?

• Approximately how much of each booklet (percent or number of pages) would you estimate that you reviewed? If you didn’t review the booklets, could you please tell me the reason(s)?

• How much of the time did you use the booklets together? And as individuals?

• What content will be helpful to you as a couple?

• What content will be least helpful as a couple?

• What changes do you recommend?

HSCT Clinicians

• Could you please tell me what you think about the content of the CT booklets for HSCT patients, CGs and dyads?

• Could you give me examples of what you think will be helpful/least helpful? Why?

• What do you think are the advantages/disadvantages of the self-directed format for HSCT dyads?

• What information do you think is missing?

• What changes would you recommend?