Table 3 Reasons for a preference for diagnosis disclosure ‘later or no disclosure’
Reasons | Self (n = 33) | Spouse (n = 33a) |
|---|---|---|
N (%) | N (%) | |
To avoid unnecessary worry | 20 (61%) | 18 (55%) |
There is no cure / no benefit of knowing | 17 (52%) | 23 (70%) |
Fear that people would treat me/them differently | 12 (36%) | 11 (33%) |
It would cause me/them to feel depressed | 11 (33%) | 18 (55%) |
To avoid putting strain on relationships | 9 (27%) | 10 (30%) |
Symptoms might progress faster | 6 (18%) | 7 (21%) |
Risk of incorrect diagnosis | 3 (9%) | 5 (15%) |
To live normally for as long as possible | 2 (6%) | 14 (42%) |