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Table 1 Local and national data sources and examples of variables collected

From: He Tamariki Kokoti Tau-Tackling Preterm: a data-linkage methodology to explore the clinical care pathway in preterm deliveries

Dataset

Type of information

Examples of variables extracted

National health index

Sociodemographic

NHI number, area deprivation, ethnicity

Mortality collection

Mortality

Ethnicity, date of death, gestational age at termination of pregnancy, birth-weight, diagnostic codes on cause of death, sudden and unexpected death indicator

National maternity collection

Pregnancy and delivery information

Maternal ethnicity, maternal height and weight at time of booking with a maternity care provider, maternal smoking status at time of booking with maternity care provider, plurality, parity, mode of delivery, Apgar at 5 min, birth weight, gestational age at delivery

National minimum dataset

Hospital events

Ethnicity, maternal and/or infant hospital admissions (public) and discharge dates, length of stay, diagnostic (ICD-10) codes

Australia New Zealand Neonatal network

Neonatal intensive care

Ethnicity, corticosteroid administration before delivery, length of stay, neonatal surgery, corrected gestational age on discharge, oxygen on discharge, enteral tube feeding on discharge (e.g. nasogastric tube)

Local hospital (DHB specific)

Pregnancy and delivery events

Maternal and paternal ethnicity, obstetric history, plurality, parity, date of admission, date of delivery

Community laboratory

Screening and diagnostics

Antenatal booking screening (e.g. blood count), gestational diabetes screening, sexually transmitted infection (note: only if screened and not results)