Skip to main content

Table 5 Examples of methods of information exchange between staff and families

From: Mapping staff perspectives towards the delivery of hospital care for children and young people with and without learning disabilities in England: a mixed methods national study

Target group

Purpose

Methods used

Parents

Information giving

Condition specific information leaflets

Admission pack

Ward book

Partnership in care nursing document

Guidelines for parents of children with LD

Eliciting feedback

Friends and family test

Planning services

Individual interviews

Parent groups and forums

Staff interview panel

Family days

Listening weeks

CYP

Eliciting feedback

Friends and family test

Paper based surveys - word/pictures/symbols

Verbal or written responses

Film

Photography

Texting

Sing and sign

Planning services

CYP groups/forums

15-step programme: go into a clinical area and within 15 steps look at what you see and how you feel about it

Spoonful of sugar scheme: nurse meets young person before a consultation to help them prepare questions which they may want to ask

CYP with LD

Information giving

Easy read materials

Symbols

Photographs

Pictures, including picture exchange communication (PECS)