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Table 4 Genetic Counseling

From: Impact of a genetic counseling requirement prior to genetic testing

   GC Requirement Policy BRCA1/2 Testing
  Total
N (%)
Before
N (%)
After
N (%)
P-value Tested
N (%)
Not Tested
N (%)
P-value
Received Genetic Counseling
 Total n = 1247 n = 297 n = 940   n = 966 n = 271  
 Yes 802 (64.3%) 86 (28.9%) 716 (75.5%) < 0.0001 689 (71.3%) 107 (39.5%) < 0.0001
 No 389 (31.2%) 193 (64.8%) 196 (20.7%) 243 (25.2%) 144 (53.1%)
 Unknown 40 (3.2%) 12 (4.0%) 28 (3.0%) 27 (2.8%) 12 (4.4%)
Most Commonly Reported Reasons for Receiving Genetic Counselinga
 Total n = 802 n = 86 n = 716   n = 689 n = 107  
 Insurance Requirement 592 (73.8%) 14 (16.3%) 578 (80.7%) < 0.0001 504 (73.1%) 85 (79.4%) 0.16
 Chance to better Understand the Test Results 246 (30.7%) 41 (47.7%) 205 (28.6%) 0.0003 224 (32.5%) 21 (19.6%) 0.0054
 Recommended by Doctor 217 (27.1%) 55 (64.0%) 162 (22.6%) < 0.0001 196 (28.4%) 21 (19.6%) 0.049
Most Commonly Reported Reasons for Not Receiving Genetic Counselinga
 Total n = 389 n = 193 n = 196   n = 243 n = 144  
 Was not Aware GC was Available 175 (45.1%) 122 (63.2%) 53 (27.2%) < 0.0001 145 (59.9%) 28 (19.4%) < 0.0001
 Insurance Issues/Requirements 88 (22.6%) 22 (11.4%) 66 (33.7%) < 0.0001 17 (7%) 70 (48.6%) < 0.0001
 Inconvenience of Additional Step 30 (7.7%) 10 (5.2%) 20 (10.3%) 0.06 12 (5%) 18 (12.5%) 0.0087
 Time Restraints 29 (7.5%) 5 (2.3%) 24 (12.3%) 0.0003 12 (5%) 17 (11.8%) 0.016
 Not Interested in Pursuing 24 (6.2%) 14 (7.3%) 10 (5.1%) 0.38 16 (6.6%) 8 (5.6%) 0.68
 Cost of Appointment 23 (5.9%) 7 (3.6%) 16 (8.2%) 0.06 4 (1.7%) 19 (13.2%) < 0.0001
Did you receive a benefit from genetic counseling?
 Total n = 632 n = 103 n = 529   n = 521 n = 110  
 Yes 503 (79.6%) 80 (77.7%) 423 (80.0%) 0.60 438 (84.1%) 64 (58.2%) < 0.0001
 No 129 (20.4%) 23 (22.3%) 106 (20.0%) 83 (15.9%) 46 (41.8%)
Would you recommend genetic counseling to family or friends?
 Total n = 633 n = 102 n = 531   n = 524 n = 109  
 Yes 574 (90.7%) 99 (97.6%) 475 (89.5%) 0.014 479 (91.4%) 95 (87.2%) 0.18
 No 59 (9.3%) 3 (2.9%) 56 (10.6%) 45 (8.6%) 14 (12.8%)
Would you utilize genetic counseling in the future?
 Total n = 626 n = 103 n = 523   n = 518 n = 108  
 Yes 548 (87.5%) 95 (92.2%) 453 (86.6%) 0.10 454 (87.6%) 94 (87.0%) 0.86
 No 78 (12.5%) 8 (7.8%) 70 (13.4%) 64 (12.4%) 14 (13%)
  1. Categories are non-exclusive